Providing Palliative and Hospice Care to Children, Adolescents and Young Adults with Cancer

Overview

Journal Semin Oncol Nurs

Specialties Nursing
Oncology

Date 2021 Jun 27

PMID 34175165

Citations 6

Authors

Kimberly A Pyke-Grimm

Beth Fisher

Amy Haskamp

Cynthia J Bell

Amy R Newman

Affiliations

Soon will be listed here.

Abstract

Objectives: To describe palliative, concurrent, and hospice care in pediatric oncology in the United States (US), we present a clinical scenario illustrating palliative and hospice care, including eligibility for concurrent care, insurance coverage and billing, barriers to accessing quality pediatric palliative and hospice care, and implications for oncology nursing practice.

Data Sources: Peer-reviewed articles, clinical practice guidelines, professional organizations, and expert clinical opinion examining pediatric oncology, palliative care, and hospice care.

Conclusion: Understanding the goals of palliative and hospice care and the differences between them is important in providing holistic, goal-directed care.

Implications For Nursing Practice: Oncology nurses play a pivotal role in supporting the goals of pediatric palliative care and hospice care and in educating patients and their families. Nurses form trusting relationships with pediatric oncology patients and their families and are in a position to advocate for best palliative care practices as disease progresses to end of life, including when appropriate concurrent care or hospice.

Citing Articles

Electronic Patient Reported Outcomes Measures (e-PROMs) in Pediatric Palliative Oncology Care: A Scoping Review.

Rusconi D, Basile I, Rampichini F, Colombo S, Arba L, Pancheri M J Palliat Care. 2024; 39(4):298-315.

PMID: 39295504 PMC: 11504155. DOI: 10.1177/08258597241274027.

Moral Distress and Pediatric Palliative Care.

Jeong S, Knackstedt A, Linebarger J, Carter B Children (Basel). 2024; 11(7).

PMID: 39062203 PMC: 11274977. DOI: 10.3390/children11070751.

An Age Group Comparison of Concurrent Hospice Care: A Cost-Effectiveness Analysis.

Svynarenko R, Cozad M, Lindley L J Hosp Palliat Nurs. 2024; 26(4):219-223.

PMID: 38748541 PMC: 11233226. DOI: 10.1097/NJH.0000000000001037.

Pediatric Oncology Hospice: A Comprehensive Review.

Tafazoli A, Cronin-Wood K Am J Hosp Palliat Care. 2024; 41(12):1467-1481.

PMID: 38225192 PMC: 11425979. DOI: 10.1177/10499091241227609.

Nurses' Perceived Needs and Barriers Regarding Pediatric Palliative Care: A Mixed-Methods Study.

Kang K, Yu S, Kim C, Lee M, Kim S, Kwon S J Hosp Palliat Care. 2023; 25(2):85-97.

PMID: 37675196 PMC: 10180034. DOI: 10.14475/jhpc.2022.25.2.85.

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