» Articles » PMID: 34104376

A Narrative Review of Current Evidence Supporting the Implementation of Electronic Patient-reported Outcome Measures in the Management of Chronic Diseases

Overview
Publisher Sage Publications
Date 2021 Jun 9
PMID 34104376
Citations 25
Authors
Affiliations
Soon will be listed here.
Abstract

An application of telemedicine of growing interest and relevance is the use of personal computers and mobile devices to collect patient-reported outcomes (PROs). PROs are self-reports of patients' health status without interpretation by anyone else. The tools developed to assess PROs are known as patient-reported outcomes measures (PROMs). The technological innovations that have led to an increased ownership of electronic devices have also facilitated the development of electronic PROMs (ePROMs). ePROMs are a conduit for telemedicine in the care of patients with chronic diseases. Various studies have demonstrated that the use of ePROMs in routine clinical practice is both acceptable and feasible with patients increasingly expressing a preference for an electronic mode of administration. There is increasing evidence that the use of electronic patient-reported outcome (ePROMs) could have significant impacts on outcomes valued by patients, healthcare providers and researchers. Whilst the development and implementation of these systems may be initially costly and resource-intensive, patient preferences and existing evidence to support their implementation suggests the need for continued research prioritisation in this area. This narrative review summarises and discusses evidence of the impact of ePROMs on clinical parameters and outcomes relevant to chronic diseases. We also explore recently published literature regarding issues that may influence the robust implementation of ePROMs for routine clinical practice.

Citing Articles

Determinants of Dropping Out of Remote Patient-Reported Outcome-Based Follow-Up Among Patients With Epilepsy: Prospective Cohort Study.

Bech Vestergaard S, Roost M, Christiansen D, Schougaard L JMIR Form Res. 2025; 9():e58258.

PMID: 39815409 PMC: 11755678. DOI: 10.2196/58258.


What Outcomes Matter Most to Paediatric Burn Patients and Their Caregivers: A Comparison of Short-Term and Long-Term Priorities.

Spronk I, Edgar D, Shoesmith V, Lansdorp C, Fear M, Wood F Eur Burn J. 2024; 5(4):369-388.

PMID: 39727909 PMC: 11675973. DOI: 10.3390/ebj5040033.


Content validation of an electronic remote toxicity management system in adult patients undergoing cancer treatment: a prospective longitudinal study on the QuestOnco application.

Longo R, Goetz C, Campitiello M, Plastino F, Egea J, Legros P BMC Cancer. 2024; 24(1):1568.

PMID: 39716103 PMC: 11665079. DOI: 10.1186/s12885-024-13312-4.


Electronic Patient-Reported Outcome Measures in Burn Scar Rehabilitation: A Guide to Implementation and Evaluation.

Meirte J, Tyack Z Eur Burn J. 2024; 3(2):290-308.

PMID: 39600000 PMC: 11575389. DOI: 10.3390/ebj3020025.


Better health-related quality of life is associated with prolonged survival and reduced hospitalization risk among dialysis-dependent chronic kidney disease patients: a historical cohort study.

Rincon Bello A, Ion Titapiccolo J, Berdud Godoy I, Samaniego D, Ortego Perez S, Sobrino Perez A BMC Nephrol. 2024; 25(1):388.

PMID: 39482605 PMC: 11526659. DOI: 10.1186/s12882-024-03835-0.


References
1.
Johnson J, Al Sayah F, Buzinski R, Corradetti B, Davison S, Elliott M . A cluster randomized controlled trial for the Evaluation of routinely Measured PATient reported outcomes in HemodialYsis care (EMPATHY): a study protocol. BMC Health Serv Res. 2020; 20(1):731. PMC: 7418420. DOI: 10.1186/s12913-020-05557-z. View

2.
Denis F, Yossi S, Septans A, Charron A, Voog E, Dupuis O . Improving Survival in Patients Treated for a Lung Cancer Using Self-Evaluated Symptoms Reported Through a Web Application. Am J Clin Oncol. 2015; 40(5):464-469. DOI: 10.1097/COC.0000000000000189. View

3.
Espallargues M, Valderas J, Alonso J . Provision of feedback on perceived health status to health care professionals: a systematic review of its impact. Med Care. 2000; 38(2):175-86. DOI: 10.1097/00005650-200002000-00007. View

4.
Buergy D, Siefert V, Neumaier C, Ganslandt T, Sperk E, Blessing M . Prospective trial on telemonitoring of geriatric cancer patients using handheld devices. Strahlenther Onkol. 2019; 196(3):205-212. DOI: 10.1007/s00066-019-01548-0. View

5.
Absolom K, Gibson A, Velikova G . Engaging Patients and Clinicians in Online Reporting of Adverse Effects During Chemotherapy for Cancer: The eRAPID System (Electronic Patient Self-Reporting of Adverse Events: Patient Information and aDvice). Med Care. 2019; 57 Suppl 5 Suppl 1:S59-S65. DOI: 10.1097/MLR.0000000000001085. View