A Home-Based Care Research Agenda by and for Homebound Older Adults and Caregivers

Overview

Journal J Appl Gerontol

Specialties Geriatrics
Infectious Diseases

Date 2021 Apr 1

PMID 33792428

Citations 1

Authors

Bruce Leff

Orla C Sheehan

Krista L Harrison

Ashley Eaton England

Alex Mickler

Pragyashree Sharma Basyal

Sarah K Garrigues

Mattan Schuchman

Carla Perissinotto

Sarah B Garrett

Christine S Ritchie

Affiliations

Soon will be listed here.

Abstract

Homebound older adults have not had a voice in establishing a research agenda relevant to their needs and perspectives. We engaged homebound older adults receiving home-based primary care and caregivers to serve as stakeholder advisors to develop a patient- and caregiver-centered research agenda for home-based care. Over 9 months, we facilitated eight tablet-enabled videoconference meetings. We oriented advisors to patient-centered outcome research and research question development. Advisors developed and prioritized a list of 14 research domains and 127 associated research questions. The top three prioritized research domains in descending rank order (number of associated research questions) were out-of-pocket costs of caregiving (10), access to home-based care and related policy issues (19), and relationship with doctors (15). This research agenda can guide researchers' efforts to focus on areas of importance to the ultimate end users of their research.

Citing Articles

Palliative Nursing in Home Health Care Across the Lifespan.

Murali K, Ma C, Harrison K, Hunt L, Rosa W, Boyden J Am J Nurs. 2025; 124(12):53-59.

PMID: 39773597 PMC: 11812564. DOI: 10.1097/01.NAJ.0001095240.11717.87.

Patient-centered outcomes and outcome measurements for people aged 65 years and older-a scoping review.

Andersson A, Dahlkvist L, Kurland L BMC Geriatr. 2024; 24(1):528.

PMID: 38890618 PMC: 11186133. DOI: 10.1186/s12877-024-05134-7.

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