Online Modified-Delphi: a Potential Method for Continuous Patient Engagement Across Stages of Clinical Practice Guideline Development

Overview

Journal J Gen Intern Med

Publisher Springer

Specialty General Medicine

Date 2021 Mar 20

PMID 33742303

Citations 7

Authors

Sean Grant

Courtney Armstrong

Dmitry Khodyakov

Affiliations

Soon will be listed here.

Citing Articles

The technical expert/clinical user/patient panel (TECUPP): centering patient and family perspectives in patient-reported measure development.

Marsolais E, Anhang Price R, Berdahl C, Shenk A, Schulson L, OHanlon C Res Involv Engagem. 2025; 11(1):2.

PMID: 39773685 PMC: 11708192. DOI: 10.1186/s40900-024-00661-4.

Guidance for engagement in health guideline development: A scoping review.

Petkovic J, Riddle A, Lytvyn L, Khabsa J, Akl E, Welch V Campbell Syst Rev. 2024; 20(4):e70006.

PMID: 39588485 PMC: 11586780. DOI: 10.1002/cl2.70006.

Assessing parent-child interaction with deaf and hard of hearing infants aged 0-3 years: An international multi-professional e-Delphi.

Curtin M, Cruice M, Morgan G, Herman R PLoS One. 2024; 19(4):e0301722.

PMID: 38683866 PMC: 11057743. DOI: 10.1371/journal.pone.0301722.

Disciplinary trends in the use of the Delphi method: A bibliometric analysis.

Khodyakov D, Grant S, Kroger J, Gadwah-Meaden C, Motala A, Larkin J PLoS One. 2023; 18(8):e0289009.

PMID: 37582076 PMC: 10427003. DOI: 10.1371/journal.pone.0289009.

Moving toward standardization: physician reporting of sleep studies.

Lastra A, Ingram D, Park J, James E, Matthews C, Canapari C J Clin Sleep Med. 2022; 19(3):595-603.

PMID: 36546360 PMC: 9978423. DOI: 10.5664/jcsm.10442.

References

Guyatt G, Oxman A, Kunz R, Atkins D, Brozek J, Vist G . GRADE guidelines: 2. Framing the question and deciding on important outcomes. J Clin Epidemiol. 2011; 64(4):395-400. DOI: 10.1016/j.jclinepi.2010.09.012. View

Pai M, Yeung C, Akl E, Darzi A, Hillis C, Legault K . Strategies for eliciting and synthesizing evidence for guidelines in rare diseases. BMC Med Res Methodol. 2019; 19(1):67. PMC: 6437842. DOI: 10.1186/s12874-019-0713-0. View

Denger B, Kinnett K, Martin A, Grant S, Armstrong C, Khodyakov D . Patient and caregiver perspectives on guideline adherence: the case of endocrine and bone health recommendations for Duchenne muscular dystrophy. Orphanet J Rare Dis. 2019; 14(1):205. PMC: 6702715. DOI: 10.1186/s13023-019-1173-7. View

Khodyakov D, Denger B, Grant S, Kinnett K, Armstrong C, Martin A . The RAND/PPMD Patient-Centeredness Method: a novel online approach to engaging patients and their representatives in guideline development. Eur J Pers Cent Healthc. 2021; 7(3):470-475. PMC: 8281319. View

Brouwers M, Kho M, Browman G, Burgers J, Cluzeau F, Feder G . AGREE II: advancing guideline development, reporting and evaluation in health care. CMAJ. 2010; 182(18):E839-42. PMC: 3001530. DOI: 10.1503/cmaj.090449. View

Armstrong C, Grant S, Kinnett K, Denger B, Martin A, Coulter I . Participant experiences with a new online modified-Delphi approach for engaging patients and caregivers in developing clinical guidelines. Eur J Pers Cent Healthc. 2021; 7(3):476-489. PMC: 8375559. View

Schunemann H, Al-Ansary L, Forland F, Kersten S, Komulainen J, Kopp I . Guidelines International Network: Principles for Disclosure of Interests and Management of Conflicts in Guidelines. Ann Intern Med. 2015; 163(7):548-53. DOI: 10.7326/M14-1885. View

Ann Hall D, Smith H, Heffernan E, Fackrell K . Recruiting and retaining participants in e-Delphi surveys for core outcome set development: Evaluating the COMiT'ID study. PLoS One. 2018; 13(7):e0201378. PMC: 6066228. DOI: 10.1371/journal.pone.0201378. View

Pollock A, Campbell P, Struthers C, Synnot A, Nunn J, Hill S . Stakeholder involvement in systematic reviews: a scoping review. Syst Rev. 2018; 7(1):208. PMC: 6260873. DOI: 10.1186/s13643-018-0852-0. View

10.

van Wersch A, Eccles M . Involvement of consumers in the development of evidence based clinical guidelines: practical experiences from the North of England evidence based guideline development programme. Qual Health Care. 2001; 10(1):10-6. PMC: 1743421. DOI: 10.1136/qhc.10.1.10. View

11.

Qaseem A, Forland F, Macbeth F, Ollenschlager G, Phillips S, van der Wees P . Guidelines International Network: toward international standards for clinical practice guidelines. Ann Intern Med. 2012; 156(7):525-31. DOI: 10.7326/0003-4819-156-7-201204030-00009. View

12.

Armstrong M, Rueda J, Gronseth G, Daniel Mullins C . Framework for enhancing clinical practice guidelines through continuous patient engagement. Health Expect. 2016; 20(1):3-10. PMC: 5217879. DOI: 10.1111/hex.12467. View

13.

Legare F, Boivin A, van der Weijden T, Pakenham C, Burgers J, Legare J . Patient and public involvement in clinical practice guidelines: a knowledge synthesis of existing programs. Med Decis Making. 2011; 31(6):E45-74. DOI: 10.1177/0272989X11424401. View

14.

Armstrong M, Bloom J . Patient involvement in guidelines is poor five years after institute of medicine standards: review of guideline methodologies. Res Involv Engagem. 2017; 3:19. PMC: 5623959. DOI: 10.1186/s40900-017-0070-2. View

15.

de Wit M, Berlo S, Aanerud G, Aletaha D, Bijlsma J, Croucher L . European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects. Ann Rheum Dis. 2011; 70(5):722-6. DOI: 10.1136/ard.2010.135129. View

16.

den Breejen E, Nelen W, Schol S, Kremer J, Hermens R . Development of guideline-based indicators for patient-centredness in fertility care: what patients add. Hum Reprod. 2013; 28(4):987-96. DOI: 10.1093/humrep/det010. View

17.

Khodyakov D, Kinnett K, Grant S, Lucas A, Martin A, Denger B . Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol. JMIR Res Protoc. 2017; 6(4):e57. PMC: 5429434. DOI: 10.2196/resprot.6902. View

18.

Murphy M, Black N, Lamping D, McKEE C, Sanderson C, Askham J . Consensus development methods, and their use in clinical guideline development. Health Technol Assess. 1998; 2(3):i-iv, 1-88. View

19.

Schunemann H, Wiercioch W, Etxeandia I, Falavigna M, Santesso N, Mustafa R . Guidelines 2.0: systematic development of a comprehensive checklist for a successful guideline enterprise. CMAJ. 2013; 186(3):E123-42. PMC: 3928232. DOI: 10.1503/cmaj.131237. View

20.

Khodyakov D, Grant S, Denger B, Kinnett K, Martin A, Booth M . Using an Online, Modified Delphi Approach to Engage Patients and Caregivers in Determining the Patient-Centeredness of Duchenne Muscular Dystrophy Care Considerations. Med Decis Making. 2019; 39(8):1019-1031. PMC: 6900571. DOI: 10.1177/0272989X19883631. View