Women's Health Guidelines for the Care of People with Spina Bifida

Overview

Journal J Pediatr Rehabil Med

Publisher Sage Publications

Specialties Pediatrics
Rehabilitation Medicine

Date 2020 Dec 16

PMID 33325413

Citations 3

Authors

Anne Berndl

Margaret Nosek

Ashley Waddington

Affiliations

Soon will be listed here.

Abstract

Women and girls with spina bifida have specific health care concerns. It is essential that they, and their health care providers have access to information to help them make healthy choices throughout their lifespan. This article aims to address key aspects of health pertinent to girls and women with spina bifida and outlines the SB Women's Health Guidelines for the Care of People with Spina Bifida. Further research into this area is needed.

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References

. Recommendations for the use of folic acid to reduce the number of cases of spina bifida and other neural tube defects. MMWR Recomm Rep. 1992; 41(RR-14):1-7. View

Black A, Guilbert E, Costescu D, Dunn S, Fisher W, Kives S . No. 329-Canadian Contraception Consensus Part 4 of 4 Chapter 9: Combined Hormonal Contraception. J Obstet Gynaecol Can. 2017; 39(4):229-268.e5. DOI: 10.1016/j.jogc.2016.10.005. View

Wang X, Wang H, Fan Y, Hu Z, Guan Q, Zhang Q . Management of acute hydrocephalus due to pregnancy with ventriculoperitoneal shunt. Arch Gynecol Obstet. 2013; 288(5):1179-82. DOI: 10.1007/s00404-013-2858-0. View

Whitaker R, Hunt G . Incidence and distribution of renal anomalies in patients with neural tube defects. Eur Urol. 1987; 13(5):322-3. DOI: 10.1159/000472810. View

Magee L, Pels A, Helewa M, Rey E, von Dadelszen P . Diagnosis, evaluation, and management of the hypertensive disorders of pregnancy. Pregnancy Hypertens. 2015; 4(2):105-45. DOI: 10.1016/j.preghy.2014.01.003. View

Black A, Yang Q, Wen S, Lalonde A, Guilbert E, Fisher W . Contraceptive use among Canadian women of reproductive age: results of a national survey. J Obstet Gynaecol Can. 2009; 31(7):627-40. DOI: 10.1016/s1701-2163(16)34242-6. View

Kuczkowski K . Labor analgesia for the parturient with spinal cord injury: what does an obstetrician need to know?. Arch Gynecol Obstet. 2006; 274(2):108-12. DOI: 10.1007/s00404-006-0126-2. View

Wilson R, Audibert F, Brock J, Carroll J, Cartier L, Gagnon A . Pre-conception Folic Acid and Multivitamin Supplementation for the Primary and Secondary Prevention of Neural Tube Defects and Other Folic Acid-Sensitive Congenital Anomalies. J Obstet Gynaecol Can. 2015; 37(6):534-52. DOI: 10.1016/s1701-2163(15)30230-9. View

Loret de Mola J, Carpenter S . Management of genital prolapse in neonates and young women. Obstet Gynecol Surv. 1996; 51(4):253-60. DOI: 10.1097/00006254-199604000-00022. View

10.

Sramkova T, Skrivanova K, Dolan I, Zamecnik L, Sramkova K, Kriz J . Women's Sex Life After Spinal Cord Injury. Sex Med. 2017; 5(4):e255-e259. PMC: 5693454. DOI: 10.1016/j.esxm.2017.07.003. View

11.

Natarajan V, Kapur D, Sharma S, Singh G . Pregnancy in patients with spina bifida and urinary diversion. Int Urogynecol J Pelvic Floor Dysfunct. 2002; 13(6):383-5. DOI: 10.1007/s001920200085. View

12.

Black A, Guilbert E, Costescu D, Dunn S, Fisher W, Kives S . Canadian Contraception Consensus (Part 2 of 4). J Obstet Gynaecol Can. 2015; 37(11):1033-9. DOI: 10.1016/s1701-2163(16)30054-8. View

13.

von Linstow M, Biering-Sorensen I, Liebach A, Lind M, Seitzberg A, Hansen R . Spina bifida and sexuality. J Rehabil Med. 2014; 46(9):891-7. DOI: 10.2340/16501977-1863. View

14.

Trottier M, Erebara A, Bozzo P . Treating constipation during pregnancy. Can Fam Physician. 2012; 58(8):836-8. PMC: 3418980. View

15.

Renaud M, Le T . Epidemiology and investigations for suspected endometrial cancer. J Obstet Gynaecol Can. 2013; 35(4):380-381. DOI: 10.1016/S1701-2163(15)30970-1. View

16.

Sterling L, Keunen J, Wigdor E, Sermer M, Maxwell C . Pregnancy outcomes in women with spinal cord lesions. J Obstet Gynaecol Can. 2013; 35(1):39-43. DOI: 10.1016/s1701-2163(15)31046-x. View

17.

Greenwood C, Stainton M . Back pain/discomfort in pregnancy: invisible and forgotten. J Perinat Educ. 2007; 10(1):1-12. PMC: 1595051. DOI: 10.1624/105812401X88002. View

18.

Slootjes H, McKinstry C, Kenny A . Maternal role transition: Why new mothers need occupational therapists. Aust Occup Ther J. 2015; 63(2):130-3. DOI: 10.1111/1440-1630.12225. View

19.

Filler G, Gharib M, Casier S, Lodige P, Ehrich J, Dave S . Prevention of chronic kidney disease in spina bifida. Int Urol Nephrol. 2011; 44(3):817-27. DOI: 10.1007/s11255-010-9894-5. View

20.

Blasi I, Ferrari A, Comitini G, Vinci V, Abrate M, La Sala G . Myelomeningocele and pregnancy: a case report and review of the literature. J Matern Fetal Neonatal Med. 2011; 25(7):1176-8. DOI: 10.3109/14767058.2011.599459. View