Palliative Care Delivery in Residential Aged Care: Bereaved Family Member Experiences of the Supportive Hospice Aged Residential Exchange (SHARE) Intervention

Overview

Journal BMC Palliat Care

Publisher Biomed Central

Specialty Critical Care

Date 2020 Aug 19

PMID 32807170

Citations 2

Authors

Rosemary Frey

Sophia Barham

Deborah Balmer

Michal Boyd

Jackie Robinson

Merryn Gott

Affiliations

Soon will be listed here.

Abstract

Background: The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specialist palliative care nurses' knowledge and skill to care for frail older people.

Method: The experiences of 18 bereaved families concerning the palliative care journey (both at the start and finish of a one-year implementation of SHARE) were explored using semi-structured interviews.

Results: Three themes were important to bereaved families' experience: communication with staff, systems of care, and hospice involvement. Sub-themes indicating changes in these three components of care between the start and finish of SHARE was identified. A fourth theme highlighted challenges (relationship with GP, staff shortages, and turnover) that continued across SHARE.

Conclusion: Findings indicated that SHARE benefited families (improved communication and support) through the end of life journey of their relatives, but challenges remained.

Citing Articles

The central role of housing key workers in supporting healthcare interactions for people experiencing homelessness and implications for palliative care: a qualitative study.

Gott M, Williams L, Wiles J, Black S, Moeke-Maxwell T, Robinson J BMC Palliat Care. 2024; 23(1):275.

PMID: 39623357 PMC: 11613513. DOI: 10.1186/s12904-024-01598-x.

Australian residential aged care home staff experiences of implementing an intervention to improve palliative and end-of-life care for residents: A qualitative study.

Nagarajan S, Poulos C, Clayton J, Atee M, Morris T, Lovell M Health Soc Care Community. 2022; 30(6):e5588-e5601.

PMID: 36068671 PMC: 10087131. DOI: 10.1111/hsc.13984.

References

Bolt S, Verbeek L, Meijers J, van der Steen J . Families' Experiences With End-of-Life Care in Nursing Homes and Associations With Dying Peacefully With Dementia. J Am Med Dir Assoc. 2019; 20(3):268-272. DOI: 10.1016/j.jamda.2018.12.001. View

Rockwood K, Song X, MacKnight C, Bergman H, Hogan D, McDowell I . A global clinical measure of fitness and frailty in elderly people. CMAJ. 2005; 173(5):489-95. PMC: 1188185. DOI: 10.1503/cmaj.050051. View

Clarke A, Ross H . Influences on nurses' communications with older people at the end of life: perceptions and experiences of nurses working in palliative care and general medicine. Int J Older People Nurs. 2010; 1(1):34-43. DOI: 10.1111/j.1748-3743.2006.00006.x. View

Foster S, Balmer D, Gott M, Frey R, Robinson J, Boyd M . Patient-centred care training needs of health care assistants who provide care for people with dementia. Health Soc Care Community. 2019; 27(4):917-925. DOI: 10.1111/hsc.12709. View

Connolly M, Broad J, Boyd M, Kerse N, Gott M . Residential aged care: the de facto hospice for New Zealand's older people. Australas J Ageing. 2014; 33(2):114-20. DOI: 10.1111/ajag.12010. View

Tong A, Sainsbury P, Craig J . Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007; 19(6):349-57. DOI: 10.1093/intqhc/mzm042. View

Haultain R . Take a stand--sign the charter for quality aged care. Nurs N Z. 2011; 17(3):23. View

Broad J, Gott M, Kim H, Boyd M, Chen H, Connolly M . Where do people die? An international comparison of the percentage of deaths occurring in hospital and residential aged care settings in 45 populations, using published and available statistics. Int J Public Health. 2012; 58(2):257-67. DOI: 10.1007/s00038-012-0394-5. View

Frey R, Foster S, Boyd M, Robinson J, Gott M . Family experiences of the transition to palliative care in aged residential care (ARC): a qualitative study. Int J Palliat Nurs. 2017; 23(5):238-247. DOI: 10.12968/ijpn.2017.23.5.238. View

10.

Lindsay S, Fellin M, Cruickshank H, McPherson A, Maxwell J . Youth and parents' experiences of a new inter-agency transition model for spina bifida compared to youth who did not take part in the model. Disabil Health J. 2016; 9(4):705-12. DOI: 10.1016/j.dhjo.2016.05.009. View

11.

Muircroft W, McKimm J, William L, MacLeod R . A New Zealand perspective on palliative care for Māori. J Palliat Care. 2010; 26(1):54-8. View

12.

Ronaldson S, Hayes L, Carey M, Aggar C . A study of nurses' knowledge of a palliative approach in residential aged care facilities. Int J Older People Nurs. 2010; 3(4):258-67. DOI: 10.1111/j.1748-3743.2008.00136.x. View

13.

Frey R, Balmer D, Boyd M, Robinson J, Gott M . Palliative care nurse specialists' reflections on a palliative care educational intervention in long-term care: an inductive content analysis. BMC Palliat Care. 2019; 18(1):103. PMC: 6864945. DOI: 10.1186/s12904-019-0488-4. View

14.

Midtbust M, Alnes R, Gjengedal E, Lykkeslet E . Perceived barriers and facilitators in providing palliative care for people with severe dementia: the healthcare professionals' experiences. BMC Health Serv Res. 2018; 18(1):709. PMC: 6134769. DOI: 10.1186/s12913-018-3515-x. View

15.

Balmer D, Frey R, Gott M, Robinson J, Boyd M . Provision of palliative and end-of-life care in New Zealand residential aged care facilities: general practitioners' perspectives. Aust J Prim Health. 2020; 26(2):124-131. DOI: 10.1071/PY19081. View

16.

Gonella S, Basso I, De Marinis M, Campagna S, Di Giulio P . Good end-of-life care in nursing home according to the family carers' perspective: A systematic review of qualitative findings. Palliat Med. 2019; 33(6):589-606. DOI: 10.1177/0269216319840275. View

17.

Kellett U . Seizing possibilities for positive family caregiving in nursing homes. J Clin Nurs. 2007; 16(8):1479-87. DOI: 10.1111/j.1365-2702.2006.01844.x. View

18.

Balmer D, Frey R, Gott M, Collier A, Boyd M . A Place to Live and to Die: A Qualitative Exploration of the Social Practices and Rituals of Death in Residential Aged Care. Omega (Westport). 2020; 85(1):38-58. DOI: 10.1177/0030222820935217. View

19.

Anderson W, Winters K, Arnold R, Puntillo K, White D, Auerbach A . Studying physician-patient communication in the acute care setting: the hospitalist rapport study. Patient Educ Couns. 2010; 82(2):275-9. PMC: 3025053. DOI: 10.1016/j.pec.2010.04.015. View

20.

Biola H, Sloane P, Williams C, Daaleman T, Williams S, Zimmerman S . Physician communication with family caregivers of long-term care residents at the end of life. J Am Geriatr Soc. 2007; 55(6):846-56. DOI: 10.1111/j.1532-5415.2007.01179.x. View