Conceptualizing Caregiving Activities for Persons with Dementia (PwD) Through a Patient Work Lens

Overview

Journal Appl Ergon

Specialty Psychology

Date 2020 Mar 17

PMID 32174358

Citations 16

Authors

Siddarth Ponnala

Laura Block

Aloysius J Lingg

Amy J Kind

Nicole E Werner

Affiliations

Soon will be listed here.

Abstract

Informal caregivers are an integral part of care delivery for persons with dementia (PwD). Informal caregivers take part in a wide range of care activities both individually and collaboratively with other caregivers. Caregiving often involves high demands in the face of limited resources, which can lead to stress, burden, and burnout. To support caregivers, we need to conceptualize caregiving activities they perform, and the networks and roles through which they perform work. We performed a directed content analysis on interview data from twenty caregivers and applied a human factors approach to characterize informal caregiving work. Our results revealed 1) nuances in caregiving roles, 2) differences in caregiving networks, and 3) 13 categories of caregiving activities characterized by time commitments; physical, cognitive and socio-behavioral demands; and varying network dependencies. These findings can be applied in future studies to evaluate the needs of caregiving networks and how to better support them.

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