» Articles » PMID: 32049983

Perceived Needs of Patients and Family Caregivers Regarding Home-based Enteral Nutritional Therapy in South Africa: A Qualitative Study

Overview
Journal PLoS One
Date 2020 Feb 13
PMID 32049983
Citations 2
Authors
Affiliations
Soon will be listed here.
Abstract

Introduction: The need for specialized care, particularly enteral nutritional therapy in community settings is now increasing with implications for both patients and primary care providers. More research is needed to identify the needs of patients and primary caregivers. The study aimed to explore the perceived support needs regarding the provision of home-based enteral nutritional therapy among critically ill adult patients and family caregivers in the KwaZulu-Natal Province of South Africa.

Methods: A qualitative study of purposely selected adult patients on homebased enteral nutritional therapy and family caregivers was conducted in a district hospital, a community health centre, two primary health care clinics and selected households in the KwaZulu-Natal Province, South Africa. Semi-structured individual interviews were conducted between June and September 2018 and the content analysis approach was used to analyse data.

Results: Two major themes and five subthemes emerged from the results of the interviews. The major themes concerned socioeconomic and psychosocial support needs related to the provision of home-based enteral nutritional therapy. Subthemes included the need for financial assistance, need for enteral nutrition products and supplementary supplies, need for infrastructure for continuity of care, and psychological support needs.

Conclusion: Results of this study confirm the need for developing strategies adapted to a South African context and yonder to meet patients' and family caregivers' needs with regard to nutritional services. More research on the identification of needs through monitoring and evaluation of the implementation of nutritional guidelines is needed, particularly in the district hospital and primary health care (PHC) setting.

Citing Articles

Family-Focused Nursing Research in WHO Afro-Region Member States: A Scoping Review.

Chironda G, Jarvis M, Brysiewicz P J Fam Nurs. 2022; 29(2):136-154.

PMID: 36433834 PMC: 10160405. DOI: 10.1177/10748407221132018.


Experiences and needs of home caregivers for enteral nutrition: A systematic review of qualitative research.

Mou J, Sun J, Zhang R, Yang Y, Yang W, Zhao X Nurs Open. 2021; 9(1):11-21.

PMID: 34273248 PMC: 8685892. DOI: 10.1002/nop2.990.

References
1.
Weeks C . Home Blenderized Tube Feeding: A Practical Guide for Clinical Practice. Clin Transl Gastroenterol. 2019; 10(2):e00001. PMC: 6602605. DOI: 10.14309/ctg.0000000000000001. View

2.
Pedron-Giner C, Calderon C, Martinez-Costa C, Borraz Gracia S, Gomez-Lopez L . Factors predicting distress among parents/caregivers of children with neurological disease and home enteral nutrition. Child Care Health Dev. 2013; 40(3):389-97. DOI: 10.1111/cch.12038. View

3.
Sharma K, Mogensen K, Robinson M . Pathophysiology of Critical Illness and Role of Nutrition. Nutr Clin Pract. 2018; 34(1):12-22. DOI: 10.1002/ncp.10232. View

4.
Wischmeyer P . The evolution of nutrition in critical care: how much, how soon?. Crit Care. 2013; 17 Suppl 1:S7. PMC: 3603464. DOI: 10.1186/cc11505. View

5.
Krems J, Kenrick D, Neel R . Individual Perceptions of Self-Actualization: What Functional Motives Are Linked to Fulfilling One's Full Potential?. Pers Soc Psychol Bull. 2017; 43(9):1337-1352. DOI: 10.1177/0146167217713191. View