Facilitating Transition of Young People with Long-term Health Conditions from Children's to Adults' Healthcare Services - Implications of a 5-year Research Programme

Overview

Journal Clin Med (Lond)

Specialty General Medicine

Date 2020 Jan 17

PMID 31941736

Citations 16

Authors

Allan Colver

Tim Rapley

Jeremy R Parr

Helen McConachie

Gail Dovey-Pearce

Ann Le Couteur

Janet E McDonagh

Caroline Bennett

Gregory Maniatopoulos

Mark S Pearce

Debbie Reape

Nichola Chater

Helena Gleeson

Luke Vale

Affiliations

Soon will be listed here.

Abstract

Background: During transition from children's to adults' healthcare, young adults with long-term conditions may show delays in psychosocial development compared to their peers without long-term conditions, and deterioration of their conditions' medical control.

Methods: This paper integrates the findings, already published in 10 separate papers, of a 5-year transition research programme.

Implications: There is an important role for funders (commissioners) of adults' services to fund transitional healthcare, in addition to funders of children's services who currently take responsibility.It is important that healthcare provider organisations adopt an organisation-wide approach to implementation to ensure that good practice is adopted in children's and adults' services, not just adopted by enthusiasts in some specialties. This includes provision of 'developmentally appropriate healthcare' which recognises the changing biopsychosocial developmental needs of young people.Three features of transitional healthcare were associated with improved outcomes: appropriate parent involvement, promotion of young people's confidence in managing their health and meeting the adult team before transfer. These should be maintained or introduced as a priority.Child and adult healthcare providers should routinely explore with a young person how they approach transition and personalise their clinical approach thereafter.These implications are relevant for a range of stakeholders, including funders of transitional healthcare, organisations providing transitional healthcare and clinical practitioners.

Citing Articles

Transition and Life-Long Care for Adults With Cerebral Palsy: A Patient Group 'Too Hard to Impact!' Are We Still Sending Young People 'Off a Cliff'?.

Turner S, Nash C, Goodwin J, Smith J, Fairhurst C, Cadwgan J J Eval Clin Pract. 2025; 31(1):e70011.

PMID: 40019844 PMC: 11870312. DOI: 10.1111/jep.70011.

Self-perceived importance and confidence of adolescents transitioning to adult care.

Lestishock L, Cuomo C, Hickam T, Johnson-Hooper T, Maddux M, Muzzall E Health Care Transit. 2024; 3:100086.

PMID: 39712478 PMC: 11657790. DOI: 10.1016/j.hctj.2024.100086.

Optimising healthcare transition of adolescents and young adults to adult care: a perspective statement of the Italian Society of Obesity.

Morandi A, Umano G, Vania A, Gugliemi V, Muscogiuri G, Maffeis C Eat Weight Disord. 2024; 29(1):51.

PMID: 39097845 PMC: 11298504. DOI: 10.1007/s40519-024-01678-0.

Experience of pediatric to adult transition in immunology services: patient experience questionnaire and micro-costing analysis.

King C, Ridge K, Smyth J, Flinn A, Leahy T, Conlon N Front Immunol. 2024; 15:1270451.

PMID: 38510252 PMC: 10952820. DOI: 10.3389/fimmu.2024.1270451.

Young persons and healthcare professionals experience of virtual gastroenterology consultations: a multicentre survey conducted during the COVID-19 pandemic.

Hubbard R, Brooks A, Arebi N, El-Khouly S, Kiparissi F, Mozdiak E Frontline Gastroenterol. 2023; 14(6):491-496.

PMID: 37854783 PMC: 10579619. DOI: 10.1136/flgastro-2022-102354.

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