Interventions for End of Life Decision Making for Patients with Limited English Proficiency

Overview

Journal J Immigr Minor Health

Publisher Springer

Specialties Public Health
Social Sciences

Date 2019 Nov 22

PMID 31749066

Citations 5

Authors

Amelia Barwise

Joyce Balls-Berry

Jalal Soleimani

Bibek Karki

Brandon Barrett

Katerina Castillo

Samantha Kreps

Hilary Kunkel

Beatriz Vega

Patricia Erwin

Nataly Espinoza Suarez

Michael E Wilson

Affiliations

Soon will be listed here.

Abstract

Patients with limited English proficiency (LEP) experience disparities in end-of-life decision making and advance care planning. Our objective was to conduct a systematic review to assess the literature about interventions addressing these issues. Our search strategy was built around end-of-life (EOL), LEP, ACP, and goals of care. The databases included Ovid MEDLINE(R), and Epub Ahead of Print, In-Process & Other Non-Indexed Citations and Daily from 1946 to November 9, 2018, Ovid EMBASE. Eight studies from the US and Australia were included (seven studies in Spanish and one study in Greek and Italian). Interventions used trained personnel, video images, web-based programs, and written materials. Interventions were associated with increased advance directive completion and decreased preferences for some life-prolonging treatments. Interventions were deemed to be feasible and acceptable. Few interventions exist to improve end-of-life care for patients with LEP. Data are limited regarding intervention effectiveness.

Citing Articles

Perspectives and insights of critical care clinicians, patients and families from culturally and linguistically diverse backgrounds around end-of-life care in an ICU: a scoping review protocol.

Sundararajan K, Raith E, Hu R, Damarell R, Subramaniam A, Anderson N BMJ Open. 2024; 14(11):e090168.

PMID: 39488414 PMC: 11535696. DOI: 10.1136/bmjopen-2024-090168.

Through the eyes of Spanish-speaking patients, caregivers, and community leaders: a qualitative study on the in-patient hospital experience.

Nguyen N, Guillen Lozoya A, Caruso M, Capetillo Porraz M, Pacheco-Spann L, Allyse M Int J Equity Health. 2024; 23(1):164.

PMID: 39164755 PMC: 11337574. DOI: 10.1186/s12939-024-02246-9.

Advance care planning as perceived by marginalized populations: Willing to engage and facing obstacles.

Izumi S, Garcia E, Kualaau A, Sloan D, DeSanto-Madeya S, Candrian C PLoS One. 2024; 19(4):e0301426.

PMID: 38557983 PMC: 10984538. DOI: 10.1371/journal.pone.0301426.

Comparative costs for critically ill patients with limited English proficiency versus English proficiency.

Barwise A, Moriarty J, Rosedahl J, Soleimani J, Marquez A, Weister T PLoS One. 2023; 18(4):e0279126.

PMID: 37186248 PMC: 10132690. DOI: 10.1371/journal.pone.0279126.

Strategies Used by Healthcare Systems to Communicate with Hospitalized Patients and Families with Limited English Proficiency During the COVID-19 Pandemic: A Narrative Review.

Yang C, Prokop L, Barwise A J Immigr Minor Health. 2023; 25(6):1393-1401.

PMID: 36821068 PMC: 9948796. DOI: 10.1007/s10903-023-01453-w.

References

Volandes A, Ariza M, Abbo E, Paasche-Orlow M . Overcoming educational barriers for advance care planning in Latinos with video images. J Palliat Med. 2008; 11(5):700-6. DOI: 10.1089/jpm.2007.0172. View

Flores G, Abreu M, Olivar M, Kastner B . Access barriers to health care for Latino children. Arch Pediatr Adolesc Med. 1998; 152(11):1119-25. DOI: 10.1001/archpedi.152.11.1119. View

Cheng E, Chen A, Cunningham W . Primary language and receipt of recommended health care among Hispanics in the United States. J Gen Intern Med. 2007; 22 Suppl 2:283-8. PMC: 2078546. DOI: 10.1007/s11606-007-0346-6. View

Ngo-Metzger Q, Sorkin D, Phillips R, Greenfield S, Massagli M, Clarridge B . Providing high-quality care for limited English proficient patients: the importance of language concordance and interpreter use. J Gen Intern Med. 2007; 22 Suppl 2:324-30. PMC: 2078537. DOI: 10.1007/s11606-007-0340-z. View

Meghani S, Hinds P . Policy brief: the Institute of Medicine report Dying in America: Improving quality and honoring individual preferences near the end of life. Nurs Outlook. 2015; 63(1):51-9. DOI: 10.1016/j.outlook.2014.11.007. View

Woloshin S, Schwartz L, Katz S, Welch H . Is language a barrier to the use of preventive services?. J Gen Intern Med. 1997; 12(8):472-7. PMC: 1497155. DOI: 10.1046/j.1525-1497.1997.00085.x. View

Keers-Sanchez A . Mandatory provision of foreign language interpreters in health care services. J Leg Med. 2003; 24(4):557-78. DOI: 10.1080/714044490. View

Higgins J, Altman D, Gotzsche P, Juni P, Moher D, Oxman A . The Cochrane Collaboration's tool for assessing risk of bias in randomised trials. BMJ. 2011; 343:d5928. PMC: 3196245. DOI: 10.1136/bmj.d5928. View

Fischer S, Sauaia A, Min S, Kutner J . Advance directive discussions: lost in translation or lost opportunities?. J Palliat Med. 2012; 15(1):86-92. PMC: 3264957. DOI: 10.1089/jpm.2011.0328. View

10.

Carr D, Luth E . Advance Care Planning: Contemporary Issues and Future Directions. Innov Aging. 2018; 1(1):igx012. PMC: 6177019. DOI: 10.1093/geroni/igx012. View

11.

Barwise A, Juhn Y, Wi C, Novotny P, Jaramillo C, Gajic O . An Individual Housing-Based Socioeconomic Status Measure Predicts Advance Care Planning and Nursing Home Utilization. Am J Hosp Palliat Care. 2018; 36(5):362-369. PMC: 6946026. DOI: 10.1177/1049909118812431. View

12.

Pecanac K, Repenshek M, Tennenbaum D, Hammes B . Respecting Choices® and advance directives in a diverse community. J Palliat Med. 2013; 17(3):282-7. DOI: 10.1089/jpm.2013.0047. View

13.

Heyman J, Gutheil I . Older Latinos' attitudes toward and comfort with end-of-life planning. Health Soc Work. 2010; 35(1):17-26. DOI: 10.1093/hsw/35.1.17. View

14.

Mehta A, Kelley A . Advance Care Planning Codes-Getting Paid for Quality Care. JAMA Intern Med. 2019; 179(6):830-831. DOI: 10.1001/jamainternmed.2018.8105. View

15.

Nedjat-Haiem F, Cadet T, Amatya A, Thompson B, Mishra S . Efficacy of Motivational Interviewing to Enhance Advance Directive Completion in Latinos With Chronic Illness: A Randomized Controlled Trial. Am J Hosp Palliat Care. 2019; 36(11):980-992. DOI: 10.1177/1049909119851470. View

16.

Krakauer E, Crenner C, Fox K . Barriers to optimum end-of-life care for minority patients. J Am Geriatr Soc. 2002; 50(1):182-90. DOI: 10.1046/j.1532-5415.2002.50027.x. View

17.

Detering K, Sutton E, Fraser S, Wallis K, Silvester W, Mawren D . Feasibility and acceptability of advance care planning in elderly Italian and Greek speaking patients as compared to English-speaking patients: an Australian cross-sectional study. BMJ Open. 2015; 5(8):e008800. PMC: 4554907. DOI: 10.1136/bmjopen-2015-008800. View

18.

Sudore R, Landefeld C, Barnes D, Lindquist K, Williams B, Brody R . An advance directive redesigned to meet the literacy level of most adults: a randomized trial. Patient Educ Couns. 2007; 69(1-3):165-95. PMC: 2257986. DOI: 10.1016/j.pec.2007.08.015. View

19.

Fischer S, Kline D, Min S, Okuyama-Sasaki S, Fink R . Effect of Apoyo con Cariño (Support With Caring) Trial of a Patient Navigator Intervention to Improve Palliative Care Outcomes for Latino Adults With Advanced Cancer: A Randomized Clinical Trial. JAMA Oncol. 2018; 4(12):1736-1741. PMC: 6440710. DOI: 10.1001/jamaoncol.2018.4014. View

20.

Miles L, Corr C . Death Cafe. Omega (Westport). 2017; 75(2):151-165. DOI: 10.1177/0030222815612602. View