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How Children of Parents With Dementia Can Make Their Subject Positions Understandable and Meaningful

Overview
Journal Qual Health Res
Publisher Sage Publications
Specialty Health Services
Date 2019 Sep 19
PMID 31530223
Citations 3
Authors
Affiliations
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Abstract

The families of people diagnosed with dementia are commonly first-in-line caregivers. This can have a considerable effect on their lives, health, and relationships. However, few studies have focused on the children in such families. Therefore, the aim of this study was to describe how children, in their own narratives, construct themselves as subjects growing up and caring for a parent with dementia. The study applies discourse analysis. The findings show three subject positions: parent to your parent(s), orphan with parents, and time traveler stuck in time. There is a need to support these children, both as children and as young adults. More knowledge is necessary regarding the kind of support they might want or need. For health care professionals, it is important to know that it might not always be easy to ask for information or support as a child caring for a sick parent.

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Hemme Tambunan E, Simbolon I J Caring Sci. 2023; 12(3):136-143.

PMID: 38020733 PMC: 10663438. DOI: 10.34172/jcs.2023.33098.


Childhood perspectives of parental young onset dementia: A qualitative data synthesis.

Blake C, Hopper L Dementia (London). 2022; 21(4):1304-1327.

PMID: 35332810 PMC: 9109219. DOI: 10.1177/14713012221077531.


Children and young people's experience of parental dementia: A systematic review.

Chirico I, Ottoboni G, Valente M, Chattat R Int J Geriatr Psychiatry. 2021; 36(7):975-992.

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