Communication Difficulties Reported by Patients Diagnosed with Idiopathic Pulmonary Fibrosis and Their Carers: a European Focus Group Study

Overview

Journal ERJ Open Res

Specialty Pulmonary Medicine

Date 2019 Jun 14

PMID 31192248

Citations 9

Authors

Sarah Masefield

Nicola Cassidy

Derek Ross

Pippa Powell

Athol Wells

Affiliations

Soon will be listed here.

Abstract

This paper explores commonalities in the experience and unmet needs of idiopathic pulmonary fibrosis (IPF) patients and carers in Europe throughout the care pathway, focusing specifically on the unmet communication needs of patients and carers. Four patient organisations/groups in Europe held focus groups (Italy (seven patients and four carers); Belgium (six patients); Ireland (23 patients and 10 carers); and England, UK (five patients and three carers)). A focus group schedule was provided and translated into the language of each focus group by the European Lung Foundation (ELF). Content analysis was conducted by the ELF and verified by the authors of the paper. Three main themes emerged: professional-patient, professional-professional and patient-patient communication. Within these themes, eight priority areas were highlighted by two or more of the focus groups. In addition, 17 suggested action points were identified. Patients and carers in Europe have unmet communication needs, which could be met by specialist physicians and specialist centres providing more effective information and signposting to support services, including support groups and patient organisations.

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