» Articles » PMID: 31157656

Caring for the Informal Cancer Caregiver

Overview
Date 2019 Jun 4
PMID 31157656
Citations 40
Authors
Affiliations
Soon will be listed here.
Abstract

Purpose Of Review: Informal cancer caregivers play a vital role in the physical, functional, and emotional well being of cancer patients. However, the majority of informal caregivers are not prepared for their caregiving role. We reviewed and synthesized the recent literature (last 18 months) and focused on research in the following understudied areas: technology-driven interventions for informal caregivers; informal caregivers of older adults with cancer; interrelationship between informal caregiver and dyadic outcomes; and research priorities and guidelines to improve informal caregiver support.

Recent Findings: Studies focused on technology-driven informal caregiver interventions, with evidence of good feasibility and acceptability with benefits for burden and quality of life (QOL). Studies also focused on QOL for caregivers of older adults with cancer. Finally, research priorities and clinical guidelines were established through Delphi survey studies.

Summary: Despite the substantial evidence on informal cancer caregiving, more research is needed to further characterize caregivers at high risk for burden, explicate interrelationships between caregiver/patient outcomes, and test innovative and scalable interventions. Studies are also needed to understand the specific needs of informal caregivers in cancer surgery, an understudied treatment population.

Citing Articles

Patient-centered supportive roadmap: patients and caregivers need to drive their care.

Pompili C, Feldman J, Shilo S, Koffman J Interdiscip Cardiovasc Thorac Surg. 2025; 40(3).

PMID: 40071565 PMC: 11897788. DOI: 10.1093/icvts/ivaf033.


Caregiver Burden and Associated Factors Among Informal Caregivers of Hospitalized Elderly Patients in China: A Latent Profile Analysis.

Lv H, Yang S, Zhang Y, Wang Y, Zhang L, Wang J Risk Manag Healthc Policy. 2025; 18:547-559.

PMID: 39990616 PMC: 11846611. DOI: 10.2147/RMHP.S499768.


Impact of educational videos and user guide on indwelling pleural catheter caregiver training and unplanned healthcare encounters.

Young S, Chua B, Tan Q, Leong C, Phua I, Wong J BMJ Open Qual. 2025; 14(1).

PMID: 39961682 PMC: 11836833. DOI: 10.1136/bmjoq-2024-003108.


Patient and Caregiver Perceptions of Caregiving Contributions During Cancer Clinical Trials: A Mixed-Methods Study.

Cerutti J, Lent M, Holcombe R, Reblin M Cancer Med. 2025; 14(1):e70488.

PMID: 39781576 PMC: 11712184. DOI: 10.1002/cam4.70488.


Navigating the emotional landscape: exploring caregivers' journey alongside breast cancer survivors with chronic pain.

Filipponi C, Masiero M, Chichua M, Traversoni S, Pravettoni G Support Care Cancer. 2024; 33(1):32.

PMID: 39680180 PMC: 11649734. DOI: 10.1007/s00520-024-09064-3.


References
1.
Lambert S, Ould Brahim L, Morrison M, Girgis A, Yaffe M, Belzile E . Priorities for caregiver research in cancer care: an international Delphi survey of caregivers, clinicians, managers, and researchers. Support Care Cancer. 2018; 27(3):805-817. PMC: 10710859. DOI: 10.1007/s00520-018-4314-y. View

2.
Schwartz A, Riedel R, LeBlanc T, Desai D, Jenkins C, Mahoney E . The experiences of older caregivers of cancer patients following hospital discharge. Support Care Cancer. 2018; 27(2):609-616. PMC: 6326889. DOI: 10.1007/s00520-018-4355-2. View

3.
Litzelman K, Kent E, Mollica M, Rowland J . How Does Caregiver Well-Being Relate to Perceived Quality of Care in Patients With Cancer? Exploring Associations and Pathways. J Clin Oncol. 2016; 34(29):3554-3561. PMC: 5074348. DOI: 10.1200/JCO.2016.67.3434. View

4.
Hu Y, Liu T, Li F . Association between dyadic interventions and outcomes in cancer patients: a meta-analysis. Support Care Cancer. 2019; 27(3):745-761. DOI: 10.1007/s00520-018-4556-8. View

5.
Heynsbergh N, Heckel L, Botti M, Livingston P . Feasibility, useability and acceptability of technology-based interventions for informal cancer carers: a systematic review. BMC Cancer. 2018; 18(1):244. PMC: 5834845. DOI: 10.1186/s12885-018-4160-9. View