Evaluation of Quality of Life of Healthy Siblings of Children with Chronic Disease

Overview

Journal Turk Pediatri Ars

Publisher Kare Publishing

Specialty Pediatrics

Date 2019 Mar 16

PMID 30872922

Citations 11

Authors

Meltem Dinleyici

Figen Sahin Dagli

Affiliations

Soon will be listed here.

Abstract

The quality of life determination of children with chronic disease is closely related to treatment success. Quality of life assessment studies revealed that it was not limited to the individual, the quality of life of the family members also had to be assessed. Along with the child being diagnosed with chronic illness, some changes occur in the family structure, and in family roles. Quality of life assessment studies in healthy siblings generally indicate a global influence. These children live in different senses such as closure, aggression, depression, anxiety, guilt, and isolation. Psychosocial impact (short or long-term) of healthy siblings have been associated with disease type, severity, disease duration, age, sex, and ability to cope. Further comprehensive studies among healthy siblings of children with chronic disease about quality of life are needed. Building support groups (especially family support groups) to express feelings and thoughts freely for healthy siblings can positively affect the well-being and self-esteem of the child.

Citing Articles

Patient-reported outcome measures to deliver patient and family-centered care in pediatrics: the ball is now in our court.

Bele S, Santana M Front Health Serv. 2025; 5:1529731.

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Experiences of siblings of children with chronic pediatric conditions: a qualitative systematic review.

Tan R, Chan P, Shorey S Eur J Pediatr. 2024; 184(1):44.

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Examining emotional and behavioural trajectories in siblings of children with life-limiting conditions.

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Family-centred care interventions for children with chronic conditions: A scoping review.

Chow A, Saad A, Al-Baldawi Z, Iverson R, Skidmore B, Jordan I Health Expect. 2024; 27(1):e13897.

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Living with a rare disease - experiences and needs in pediatric patients and their parents.

Witt S, Schuett K, Wiegand-Grefe S, Boettcher J, Quitmann J Orphanet J Rare Dis. 2023; 18(1):242.

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