Needs of Grandparents of Preschool-Aged Children with ASD in Sweden

Overview

Journal J Autism Dev Disord

Publisher Springer

Date 2019 Mar 3

PMID 30825081

Citations 8

Authors

Rano Zakirova Engstrand

Lise Roll-Pettersson

Mara Westling Allodi

Tatja Hirvikoski

Affiliations

Soon will be listed here.

Abstract

Little is known about needs of grandparents of young children with autism in family and community settings. This study investigated perceived needs of grandparents of preschool-aged children diagnosed with ASD in the cultural context of Sweden. Participants were 120 grandparents of children enrolled into autism intervention programs provided by the public disability services in Stockholm. The Grandparents' Needs Survey and the SDQ Impact supplement were used to collect data. Grandparents expressed most needs in topic areas of information and childcare. No significant relations were found between grandparents' demographics and perceptions of needs; grandparents' needs were predicted by their perceived burden. The findings provide insight into understanding of grandparents' needs essential for planning and provision of quality family-centered early intervention services.

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