Prince A, Spector-Bagdady K
JAMA. 2025; 333(8):665-666.
PMID: 39786753
PMC: 11870236.
DOI: 10.1001/jama.2024.26279.
Park J, Leem J, Park M, Kim J, Ku Z, Chegal W
ACS Nano. 2023; 18(1):1041-1053.
PMID: 38117976
PMC: 10786166.
DOI: 10.1021/acsnano.3c10308.
Deeney C, Kostick-Quenet K
Am J Bioeth. 2023; 23(11):42-44.
PMID: 37879005
PMC: 10865338.
DOI: 10.1080/15265161.2023.2256258.
Spector-Bagdady K, Armoundas A, Arnaout R, Hall J, Yeager McSwain B, Knowles J
Circulation. 2023; 148(13):1061-1069.
PMID: 37646159
PMC: 10912036.
DOI: 10.1161/CIR.0000000000001173.
Qi T, Wu F, Wu C, He L, Huang Y, Xie X
Nat Commun. 2023; 14(1):3785.
PMID: 37355643
PMC: 10290720.
DOI: 10.1038/s41467-023-38794-x.
FAIR human neuroscientific data sharing to advance AI driven research and applications: Legal frameworks and missing metadata standards.
Reer A, Wiebe A, Wang X, Rieger J
Front Genet. 2023; 14:1086802.
PMID: 37007976
PMC: 10065194.
DOI: 10.3389/fgene.2023.1086802.
Guidelines for genetic ancestry inference created through roundtable discussions.
Wagner J, Yu J, Fullwiley D, Moore C, Wilson J, Bamshad M
HGG Adv. 2023; 4(2):100178.
PMID: 36798092
PMC: 9926022.
DOI: 10.1016/j.xhgg.2023.100178.
The Issues of Interoperability and Data Connectedness for Public Health.
Martin L, Nelson C, Yeung D, Acosta J, Qureshi N, Blagg T
Big Data. 2022; 10(S1):S19-S24.
PMID: 36070509
PMC: 9508439.
DOI: 10.1089/big.2022.0207.
Bringing machine learning to research on intellectual and developmental disabilities: taking inspiration from neurological diseases.
Gupta C, Chandrashekar P, Jin T, He C, Khullar S, Chang Q
J Neurodev Disord. 2022; 14(1):28.
PMID: 35501679
PMC: 9059371.
DOI: 10.1186/s11689-022-09438-w.
Addressing Online Health Privacy Risks for Older Adults: A Perspective on Ethical Considerations and Recommendations.
Friedman A, Pathmanabhan C, Glicksman A, Demiris G, Cappola A, McCoy M
Gerontol Geriatr Med. 2022; 8:23337214221095705.
PMID: 35493968
PMC: 9039446.
DOI: 10.1177/23337214221095705.
How NFTs could transform health information exchange.
Kostick-Quenet K, Mandl K, Minssen T, Cohen I, Gasser U, Kohane I
Science. 2022; 375(6580):500-502.
PMID: 35113709
PMC: 10111125.
DOI: 10.1126/science.abm2004.
A Policy and Practice Review of Consumer Protections and Their Application to Hospital-Sourced Data Aggregation and Analytics by Third-Party Companies.
Rahimzadeh V
Front Big Data. 2021; 3:603044.
PMID: 33693425
PMC: 7931961.
DOI: 10.3389/fdata.2020.603044.
Data Sharing Under the General Data Protection Regulation: Time to Harmonize Law and Research Ethics?.
Vlahou A, Hallinan D, Apweiler R, Argiles A, Beige J, Benigni A
Hypertension. 2021; 77(4):1029-1035.
PMID: 33583200
PMC: 7968961.
DOI: 10.1161/HYPERTENSIONAHA.120.16340.
Rethinking the Importance of the Individual within a Community of Data.
Spector-Bagdady K, Beever J
Hastings Cent Rep. 2020; 50(4):9-11.
PMID: 32633816
PMC: 7771627.
DOI: 10.1002/hast.1112.
"My Research Is Their Business, but I'm Not Their Business": Patient and Clinician Perspectives on Commercialization of Precision Oncology Data.
Spector-Bagdady K, Krenz C, Brummel C, Brenner J, Bradford C, Shuman A
Oncologist. 2020; 25(7):620-626.
PMID: 32167617
PMC: 7356718.
DOI: 10.1634/theoncologist.2019-0863.
Hospitals should act now to notify patients about research use of their data and biospecimens.
Spector-Bagdady K
Nat Med. 2020; 26(3):306-308.
PMID: 32161402
PMC: 7799853.
DOI: 10.1038/s41591-020-0795-6.
Navigating ethical quandaries with the privacy dilemma of biomedical datasets.
Gursoy G, Doerr M, Wilbanks J, Wagner J, Tang H, Brenner S
Pac Symp Biocomput. 2019; 25:736-738.
PMID: 31797643
PMC: 7329229.
