Family Health History and Genetic Services-the East Baltimore Community Stakeholder Interview Project

Overview

Journal J Community Genet

Publisher Springer

Specialty Health Services

Date 2018 Sep 2

PMID 30171451

Citations 4

Authors

Kunal Sanghavi

Ivy Moses

DuWade Moses

Adelaide Gordon

Linda Chyr

Joann Bodurtha

Affiliations

Soon will be listed here.

Abstract

Discussion of family health history (FH) has the potential to be a communication tool within families and with health providers to stimulate health promotion related to many chronic conditions, including those with genetic implications for prevention, screening, diagnosis, treatment. Diverse communities with disparities in health outcomes may require different approaches to engage individuals and families in the evolving areas of genetic risk communication, assessment, and services. This work was a partnership of a local urban agency and academic genetics professionals to increase understanding of community concerns and preferences related to FH and genetic awareness. Thirty community stakeholders in the East Baltimore area participated in structured interviews conducted by community members. We identified key themes on family health history FH, risk assessment, and genetic services. Forty-three percent (18/27) of community stakeholders thought families in East Baltimore did not discuss family health history FH with doctors. Stakeholders recognized the benefits and challenges of potential actions based on genetic risk assessment and the multiple competing priorities of families. FH awareness with community engagement and genetics education were the major needs identified by the participants. Research undertaken in active collaboration with community partners can provide enhanced consumer perspectives on the importance of family health history and its potential connections to health promotion and prevention activities.

Citing Articles

Engaging communities: A scoping literature review of community-based participatory research in genetics service delivery settings.

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Expanding Family Health History to Include Family Medication History.

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