Challenges in Engaging and Disseminating Health Research Results Among Alaska Native and American Indian People in Southcentral Alaska

Overview

Journal Am Indian Alsk Native Ment Health Res

Specialty Psychology

Date 2018 Apr 20

PMID 29671854

Citations 18

Authors

Denise A Dillard

Karen Caindec

Lisa G Dirks

Vanessa Y Hiratsuka

Affiliations

Soon will be listed here.

Abstract

Alaska Native and American Indian (AN/AI) people have negative research experiences, including lack of timely, respectful, and relevant communication about research findings. Southcentral Foundation (SCF), a tribally owned and operated health care organization in Alaska, has redesigned the health care system, enacted research policies, and established a research department which uses best practices of Community Engaged Research with AN/AI people. Department staff and community members, however, perceive significant limitations in the reach of and satisfaction with ongoing engagement and dissemination efforts. Background information is delineated which supports new approaches in research engagement using SCF as an example.

Citing Articles

Adapting a Financial Incentives Intervention for Smoking Cessation With Alaska Native Families: Phase 1 Qualitative Research to Inform the Aniqsaaq (To Breathe) Study.

Sinicrope P, Tranby B, Young A, Koller K, King D, Lee F Nicotine Tob Res. 2024; 26(10):1377-1384.

PMID: 38642396 PMC: 11417119. DOI: 10.1093/ntr/ntae092.

Aniqsaaq (To Breathe): Study protocol to develop and evaluate an Alaska Native family-based financial incentive intervention for smoking cessation.

Patten C, Koller K, King D, Prochaska J, Sinicrope P, McDonell M Contemp Clin Trials Commun. 2023; 33():101129.

PMID: 37091507 PMC: 10120296. DOI: 10.1016/j.conctc.2023.101129.

Exploring the perceived effectiveness and cultural acceptability of COVID-19 relevant social media intervention content among Alaska Native people who Smoke: The CAN Quit study.

Patten C, Koller K, Sinicrope P, Merculieff Z, Prochaska J, Hughes C Prev Med Rep. 2022; 30:102042.

PMID: 36405042 PMC: 9639382. DOI: 10.1016/j.pmedr.2022.102042.

Disseminating complex primary outcome results from a community-randomised trial to Zambian communities: lessons learned using a community dialogue approach in the HPTN 071 (PopART) trial.

Simwinga M, Ndubani R, Schaap A, Ziba D, Bwalya C, Belemu S Lancet HIV. 2022; 9(11):e801-e808.

PMID: 36191598 PMC: 10577308. DOI: 10.1016/S2352-3018(22)00226-0.

Retention in a 6-Month Smoking Cessation Study Among Alaska Native and American Indian People.

Mills D, Schaefer K, Beans J, Todd M, Robinson R, Thummel K Am Indian Alsk Native Ment Health Res. 2022; 29(3):71-89.

PMID: 36178748 PMC: 9552566. DOI: 10.5820/aian.2903.2022.71.

References

Skewes M, Lewis J . Sobriety and alcohol use among rural Alaska Native elders. Int J Circumpolar Health. 2016; 75:30476. PMC: 4744326. DOI: 10.3402/ijch.v75.30476. View

Kraus R . Health and social science research in the Arctic: guidelines and pitfalls. Am Indian Alsk Nativ Ment Health Res (1987). 1989; 2(3):77-81. DOI: 10.5820/aian.0203.1989.77. View

Timmons V, Critchley K, Campbell B, McAuley A, Taylor J, Walton F . Knowledge translation case study: a rural community collaborates with researchers to investigate health issues. J Contin Educ Health Prof. 2007; 27(3):183-7. DOI: 10.1002/chp.122. View

Hiratsuka V, Beans J, Robinson R, Shaw J, Sylvester I, Dillard D . Self-Determination in Health Research: An Alaska Native Example of Tribal Ownership and Research Regulation. Int J Environ Res Public Health. 2017; 14(11). PMC: 5707963. DOI: 10.3390/ijerph14111324. View

McShane K, Smylie J, Hastings P, Martin C . Guiding health promotion efforts with urban Inuit: a community-specific perspective on health information sources and dissemination strategies. Can J Public Health. 2006; 97(4):296-9. PMC: 6975714. View

Gottlieb K, Sylvester I, Eby D . Transforming your practice: what matters most. Fam Pract Manag. 2008; 15(1):32-8. View

Hiratsuka V, Brown J, Hoeft T, Dillard D . Alaska native people's perceptions, understandings, and expectations for research involving biological specimens. Int J Circumpolar Health. 2012; 71:18642. PMC: 3417706. DOI: 10.3402/ijch.v71i0.18642. View

Elsabbagh M, Yusuf A, Prasanna S, Shikako-Thomas K, Ruff C, Fehlings M . Community engagement and knowledge translation: progress and challenge in autism research. Autism. 2014; 18(7):771-81. DOI: 10.1177/1362361314546561. View

Trimble J . Malfeasance and foibles of the research sponsor. Damnant quod non intelligent. Am Indian Alsk Nativ Ment Health Res (1987). 1989; 2(3):58-63. DOI: 10.5820/aian.0203.1989.58. View

10.

Starks H, Shaw J, Hiratsuka V, Dillard D, Robinson R . Engaging stakeholders to develop a depression management decision support tool in a tribal health system. Qual Life Res. 2014; 24(5):1097-105. DOI: 10.1007/s11136-014-0810-9. View

11.

Hiratsuka V, Brown J, Dillard D . Views of biobanking research among Alaska native people: the role of community context. Prog Community Health Partnersh. 2012; 6(2):131-9. DOI: 10.1353/cpr.2012.0025. View

12.

Driscoll D, Hiratsuka V, Johnston J, Norman S, Reilly K, Shaw J . Process and outcomes of patient-centered medical care with Alaska Native people at Southcentral Foundation. Ann Fam Med. 2013; 11 Suppl 1:S41-9. PMC: 3707246. DOI: 10.1370/afm.1474. View

13.

Boyer B, Dillard D, Woodahl E, Whitener R, Thummel K, Burke W . Ethical issues in developing pharmacogenetic research partnerships with American Indigenous communities. Clin Pharmacol Ther. 2011; 89(3):343-5. PMC: 3090734. DOI: 10.1038/clpt.2010.303. View

14.

James R, Tsosie R, Sahota P, Parker M, Dillard D, Sylvester I . Exploring pathways to trust: a tribal perspective on data sharing. Genet Med. 2014; 16(11):820-6. PMC: 4224626. DOI: 10.1038/gim.2014.47. View

15.

Bowen S, Martens P . Demystifying knowledge translation: learning from the community. J Health Serv Res Policy. 2005; 10(4):203-11. DOI: 10.1258/135581905774414213. View

16.

Pufall E, Jones A, McEwen S, Lyall C, Peregrine A, Edge V . Community-derived research dissemination strategies in an Inuit community. Int J Circumpolar Health. 2011; 70(5):532-41. DOI: 10.3402/ijch.v70i5.17860. View

17.

Harding A, Harper B, Stone D, ONeill C, Berger P, Harris S . Conducting research with tribal communities: sovereignty, ethics, and data-sharing issues. Environ Health Perspect. 2011; 120(1):6-10. PMC: 3261947. DOI: 10.1289/ehp.1103904. View

18.

McDonald M, Papadopoulos A, Edge V, Ford J, Sumner A, Harper S . What do we know about health-related knowledge translation in the Circumpolar North? Results from a scoping review. Int J Circumpolar Health. 2016; 75:31223. PMC: 4841210. DOI: 10.3402/ijch.v75.31223. View

19.

Chen P, Diaz N, Lucas G, Rosenthal M . Dissemination of results in community-based participatory research. Am J Prev Med. 2010; 39(4):372-8. DOI: 10.1016/j.amepre.2010.05.021. View

20.

Christopher S . Recommendations for conducting successful research with Native Americans. J Cancer Educ. 2005; 20(1 Suppl):47-51. DOI: 10.1207/s15430154jce2001s_11. View