Thematic Analysis of Blog Narratives Written by People with Alzheimer's Disease and Other Dementias and Care Partners

Overview

Journal Dementia (London)

Specialty Psychiatry

Date 2018 Apr 13

PMID 29642716

Citations 7

Authors

Kristie Kannaley

Shreya Mehta

Brooks Yelton

Daniela B Friedman

Affiliations

Soon will be listed here.

Citing Articles

Technological interventions in European dementia care: a systematic review of acceptance and attitudes among people living with dementia, caregivers, and healthcare workers.

Sorrentino M, Fiorilla C, Mercogliano M, Esposito F, Stilo I, Affinito G Front Neurol. 2024; 15:1474336.

PMID: 39416661 PMC: 11479966. DOI: 10.3389/fneur.2024.1474336.

Blogging with dementia: Writing about lived experience of dementia in the public domain.

Brooks J, Savitch N Dementia (London). 2022; 21(8):2402-2417.

PMID: 35804488 PMC: 9583278. DOI: 10.1177/14713012221112384.

Representations of the experiences of people with dementia in Irish newspapers.

OMalley M, Shortt O, Carroll C Dementia (London). 2022; 21(4):1343-1362.

PMID: 35354057 PMC: 9109595. DOI: 10.1177/14713012221077526.

The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective.

Talbot C, Briggs P Dementia (London). 2022; 21(4):1363-1380.

PMID: 35333111 PMC: 8960751. DOI: 10.1177/14713012221079477.

The use of Twitter by people with young-onset dementia: A qualitative analysis of narratives and identity formation in the age of social media.

Talbot C, ODwyer S, Clare L, Heaton J Dementia (London). 2021; 20(7):2542-2557.

PMID: 33765848 PMC: 8564236. DOI: 10.1177/14713012211002410.

References

Bingley A, McDermott E, Thomas C, Payne S, Seymour J, Clark D . Making sense of dying: a review of narratives written since 1950 by people facing death from cancer and other diseases. Palliat Med. 2006; 20(3):183-95. DOI: 10.1191/0269216306pm1136oa. View

Zimmermann M . 'Journeys' in the life-writing of adult-child dementia caregivers. J Med Humanit. 2013; 34(3):385-97. DOI: 10.1007/s10912-013-9233-9. View

Miller E, Pole A . Diagnosis blog: checking up on health blogs in the blogosphere. Am J Public Health. 2010; 100(8):1514-9. PMC: 2901304. DOI: 10.2105/AJPH.2009.175125. View

Ozan-Rafferty M, Johnson J, Shah G, Kursun A . In the words of the medical tourist: an analysis of Internet narratives by health travelers to Turkey. J Med Internet Res. 2014; 16(2):e43. PMC: 3936263. DOI: 10.2196/jmir.2694. View

Ivey S, Laditka S, Price A, Tseng W, Beard R, Liu R . Experiences and concerns of family caregivers providing support to people with dementia: a cross-cultural perspective. Dementia (London). 2013; 12(6):806-20. DOI: 10.1177/1471301212446872. View

Keim-Malpass J, Baernholdt M, Erickson J, Ropka M, Schroen A, Steeves R . Blogging through cancer: young women's persistent problems shared online. Cancer Nurs. 2012; 36(2):163-72. DOI: 10.1097/NCC.0b013e31824eb879. View

Cohen-Mansfield J, Golander H, Arnheim G . Self-identity in older persons suffering from dementia: preliminary results. Soc Sci Med. 2000; 51(3):381-94. DOI: 10.1016/s0277-9536(99)00471-2. View

OBrien M, Clark D . Unsolicited written narratives as a methodological genre in terminal illness: challenges and limitations. Qual Health Res. 2011; 22(2):274-84. DOI: 10.1177/1049732311420737. View

Bergeron C, Messias D, Friedman D, Spencer S, Miller S . Involvement of Family Members and Professionals in Older Women's Post-Fall Decision Making. Health Commun. 2016; 33(3):246-253. DOI: 10.1080/10410236.2016.1255844. View

10.

Clark-McGhee K, Castro M . A narrative analysis of poetry written from the words of people given a diagnosis of dementia. Dementia (London). 2013; 14(1):9-26. DOI: 10.1177/1471301213488116. View

11.

Williams A, Duggleby W, Eby J, Cooper R, Hallstrom L, Holtslander L . Hope against hope: exploring the hopes and challenges of rural female caregivers of persons with advanced cancer. BMC Palliat Care. 2013; 12(1):44. PMC: 3878500. DOI: 10.1186/1472-684X-12-44. View

12.

Holst G, Hallberg I . Exploring the meaning of everyday life, for those suffering from dementia. Am J Alzheimers Dis Other Demen. 2003; 18(6):359-65. PMC: 10833940. DOI: 10.1177/153331750301800605. View

13.

Rodriquez J . Narrating dementia: self and community in an online forum. Qual Health Res. 2013; 23(9):1215-27. DOI: 10.1177/1049732313501725. View

14.

Surr C . Preservation of self in people with dementia living in residential care: a socio-biographical approach. Soc Sci Med. 2005; 62(7):1720-30. DOI: 10.1016/j.socscimed.2005.08.025. View

15.

Bergeron C, Friedman D, Messias D, Spencer S, Miller S . Older women's responses and decisions after a fall: The work of getting "back to normal". Health Care Women Int. 2016; 37(12):1342-1356. DOI: 10.1080/07399332.2016.1173039. View

16.

Beard R, Fetterman D, Wu B, Bryant L . The two voices of Alzheimer's: attitudes toward brain health by diagnosed individuals and support persons. Gerontologist. 2009; 49 Suppl 1:S40-9. DOI: 10.1093/geront/gnp083. View

17.

. 2011 Alzheimer's disease facts and figures. Alzheimers Dement. 2011; 7(2):208-44. DOI: 10.1016/j.jalz.2011.02.004. View

18.

Ressler P, Bradshaw Y, Gualtieri L, Chui K . Communicating the experience of chronic pain and illness through blogging. J Med Internet Res. 2012; 14(5):e143. PMC: 3510726. DOI: 10.2196/jmir.2002. View

19.

Thielst C . Weblogs: a communication tool. J Healthc Manag. 2007; 52(5):287-9. View

20.

Raymond M, Warner A, Davies N, Iliffe S, Manthorpe J, Ahmedzhai S . Palliative care services for people with dementia: a synthesis of the literature reporting the views and experiences of professionals and family carers. Dementia (London). 2014; 13(1):96-110. DOI: 10.1177/1471301212450538. View