HIV Cure Research Community Engagement in North Carolina: a Mixed-methods Evaluation of a Crowdsourcing Contest

Overview

Journal J Virus Erad

Date 2017 Oct 24

PMID 29057087

Citations 27

Authors

Allison Mathews

Samantha Farley

Meredith Blumberg

Kimberley Knight

Lisa Hightow-Weidman

Kate Muessig

Stuart Rennie

Joseph Tucker

Affiliations

Soon will be listed here.

Abstract

Objectives: The purpose of this study was to evaluate the feasibility of using a crowdsourcing contest to promote HIV cure research community engagement.

Methods: Crowdsourcing contests are open calls for community participation to achieve a task, in this case to engage local communities about HIV cure research. Our contest solicited images and videos of what HIV cure meant to people. Contestants submitted entries to IdeaScale, an encrypted online contest platform. We used a mixed-methods study design to evaluate the contest. Engagement was assessed through attendance at promotional events and social media user analytics. Google Analytics measured contest website user-engagement statistics. Text from contest video entries was transcribed, coded and analysed using MAXQDA.

Results: There were 144 attendees at three promotional events and 32 entries from 39 contestants. Most individuals who submitted entries were black (=31), had some college education (=18) and were aged 18-23 years (=23). Social media analytics showed 684 unique page followers, 2233 unique page visits, 585 unique video views and an overall reach of 80,624 unique users. Contest submissions covered themes related to the community's role in shaping the future of HIV cure through education, social justice, creativity and stigma reduction.

Conclusion: Crowdsourcing contests are feasible for engaging community members in HIV cure research. Community contributions to crowdsourcing contests provide useful content for culturally relevant and locally responsive research engagement.

Citing Articles

How to (or how not to) implement crowdsourcing for the development of health interventions: lessons learned from four African countries.

Kpokiri E, Phiri M, Martinez-Alvarez M, Tembo M, Dziva Chikwari C, Nzvere F Health Policy Plan. 2024; 39(10):1125-1131.

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Data science research in sub-Saharan Africa: Ethical considerations in crowdsourcing for community engagement.

Day S, Rennie S S Afr J Sci. 2024; 119(5-6).

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Perceptions of HIV self-testing promotion in black barbershop businesses: implications for equitable engagement of black-owned small businesses for public health programs.

Conserve D, Mathews A, Janson S, Nwaozuru U, Jennings Mayo-Wilson L, Ritchwood T BMC Public Health. 2024; 24(1):2440.

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The Importance of Social Engagement in the Development of an HIV Cure: A Systematic Review of Stakeholder Perspectives.

Noorman M, de Wit J, Marcos T, Stutterheim S, Jonas K, den Daas C AIDS Behav. 2023; 27(11):3789-3812.

PMID: 37329470 PMC: 10589186. DOI: 10.1007/s10461-023-04095-z.

Engaging Youth and Young Adults in the COVID-19 Pandemic Response via the "It's Our Turn" Crowdsourcing Contest.

Evans L, Gomez O, Jimenez D, Williamson H, Carver A, Parthasarathy S Int J Environ Res Public Health. 2023; 20(6).

PMID: 36982019 PMC: 10049566. DOI: 10.3390/ijerph20065112.

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