» Articles » PMID: 28828197

Transition Care in Inflammatory Bowel Disease: A Needs Assessment Survey of Quebec Gastroenterologists and Allied Nurses

Overview
Date 2017 Aug 23
PMID 28828197
Citations 4
Authors
Affiliations
Soon will be listed here.
Abstract

Aim: To determine the tools needed and problems encountered during the transition of inflammatory bowel disease (IBD) patients from pediatric to adult gastroenterologists (GIs) in Québec, Canada.

Methods: We conducted a needs assessment survey of Quebec health care professionals (HCPs). The survey was handed out to 136 Québec HCPs at a local conference in 2013. Additionally, it was emailed to any other HCPs in Quebec involved in caring for IBD patients. The completed surveys were compiled to derive descriptive data. Further specific subgroup analysis was then conducted.

Results: Among the conference attendees and individuals emailed 77 (28.2%) completed the questionnaire. Respondents included adult GIs (61.3%), pediatric GIs (20.8%) and IBD nurses (18.3%). The majority of respondents believed that a standardized structure is important for a successful transition. Adult and pediatric GIs equally felt that patients were inadequately prepared for the transition ( = 0.6). There were significant differences between adult and pediatric GIs when it came to resource availability (55.6% 90.9%, = 0.002) and perceived need of a formal transition clinic (21.7% 68.8%, = 0.0006). Both transition program and medical summaries were identified as the most valuable tools to improve transition.

Conclusion: As described in previous studies, our survey reinforces the importance of a transition program, education for young adult IBD patients and the need to improve communication between adult and pediatric GIs.

Citing Articles

Barriers to and requirements for a successful transition in inflammatory bowel disease from pediatric to adult care in Greece.

Giouleme O, Koutsoumourakis A, Katsoula A, Katsaros M, Soufleris K, Vasilaki K Ann Gastroenterol. 2023; 36(5):541-548.

PMID: 37664230 PMC: 10433259. DOI: 10.20524/aog.2023.0817.


Canadian Consensus Statements on the Transition of Adolescents and Young Adults with Inflammatory Bowel Disease from Pediatric to Adult Care: A Collaborative Initiative Between the Canadian IBD Transition Network and Crohn's and Colitis Canada.

Fu N, Bollegala N, Jacobson K, Kroeker K, Frost K, Afif W J Can Assoc Gastroenterol. 2022; 5(3):105-115.

PMID: 35669843 PMC: 9157291. DOI: 10.1093/jcag/gwab050.


Medical Summary Template for the Transfer of Patients with Inflammatory Bowel Disease from Pediatric to Adult Care.

Benchimol E, Afif W, Plamondon S, Newhook D, Nicholls S, Levesque D J Can Assoc Gastroenterol. 2022; 5(1):3-11.

PMID: 35118221 PMC: 8806045. DOI: 10.1093/jcag/gwab009.


Paediatric to Adult Transition of Care in IBD: Understanding the Current Standard of Care Among Canadian Adult Academic Gastroenterologists.

Jawaid N, Jeyalingam T, Nguyen G, Bollegala N J Can Assoc Gastroenterol. 2020; 3(6):266-273.

PMID: 33241179 PMC: 7678734. DOI: 10.1093/jcag/gwz023.

References
1.
Bernstein C, Wajda A, Svenson L, MacKenzie A, Koehoorn M, Jackson M . The epidemiology of inflammatory bowel disease in Canada: a population-based study. Am J Gastroenterol. 2006; 101(7):1559-68. DOI: 10.1111/j.1572-0241.2006.00603.x. View

2.
Blum R, GARELL D, HODGMAN C, Jorissen T, Okinow N, Orr D . Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health. 1993; 14(7):570-6. DOI: 10.1016/1054-139x(93)90143-d. View

3.
Holmes-Walker D, Llewellyn A, Farrell K . A transition care programme which improves diabetes control and reduces hospital admission rates in young adults with Type 1 diabetes aged 15-25 years. Diabet Med. 2007; 24(7):764-9. DOI: 10.1111/j.1464-5491.2007.02152.x. View

4.
Cadario F, Prodam F, Bellone S, Binotti M, Trada M, Allochis G . Transition process of patients with type 1 diabetes (T1DM) from paediatric to the adult health care service: a hospital-based approach. Clin Endocrinol (Oxf). 2009; 71(3):346-50. DOI: 10.1111/j.1365-2265.2008.03467.x. View

5.
Kim S, Ferry G . Inflammatory bowel diseases in pediatric and adolescent patients: clinical, therapeutic, and psychosocial considerations. Gastroenterology. 2004; 126(6):1550-60. DOI: 10.1053/j.gastro.2004.03.022. View