Quality of Life in Home-ventilated Children and Their Families

Overview

Journal Eur J Pediatr

Specialty Pediatrics

Date 2017 Aug 14

PMID 28803432

Citations 20

Authors

Rafael Gonzalez

Amaya Bustinza

Sarah N Fernandez

Miriam Garcia

Silvia Rodriguez

Ma Angeles Garcia-Teresa

Mirella Gaboli

Silvia Garcia

Olaia Sardon

Diego Garcia

Antonio Salcedo

Antonio Rodriguez

Ma Carmen Luna

Arturo Hernandez

Catalina Gonzalez

Alberto Medina

Estela Perez

Alicia Callejon

Juan D Toledo

Mercedes Herranz

Jesus Lopez-Herce

Affiliations

Soon will be listed here.

Abstract

Conclusions: Perceived QOL by children with HMV and their families is lower than that of healthy children. Parents are happy to care for their children at home, even though it negatively affects family life. What is Known: • The use of home mechanical ventilation (HMV) in children has increased over the last years. • Normal family functioning is usually disrupted by HMV. What is New: • The aim of HMV is to provide a lifestyle similar to that of healthy children, but perceived quality of life by these patients and their parents is low. • Most of the families caring for children on HMV agree that support and resources provided by national health institutions is insufficient.

Citing Articles

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Diaphragm pacing and independent breathing in individuals with severe Pompe disease.

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