Family-centered Services for Children with ASD and Limited Speech: The Experiences of Parents and Speech-language Pathologists

Overview

Journal J Autism Dev Disord

Publisher Springer

Date 2017 Jul 31

PMID 28756551

Citations 7

Authors

Kelsey Mandak

Janice Light

Affiliations

Soon will be listed here.

Abstract

Although family-centered services have long been discussed as essential in providing successful services to families of children with autism spectrum disorder (ASD), ideal implementation is often lacking. This study aimed to increase understanding of how families with children with ASD and limited speech receive services from speech-language pathologists (SLPs). 99 parents of children with ASD and limited speech and 211 SLPs who served children with ASD and limited speech completed questionnaires measuring their experiences with the provision of family-centered services. Findings revealed that parents and SLPs differed in their views on the degree to which family-centered services were being implemented. Clinical implications and future research directions are discussed in order to promote continued growth in the acquisition of family-centered skills.

Citing Articles

Evaluating Parents' Concerns, Needs, and Levels of Satisfaction with the Services Provided for ASD Children in Saudi Arabia.

Al Awaji N, Al-Taleb S, Albagawi T, Alshammari M, Sharar F, Mortada E J Multidiscip Healthc. 2024; 17:123-146.

PMID: 38222477 PMC: 10785689. DOI: 10.2147/JMDH.S447151.

"You Just Want to Be Able to Communicate With Your Child": Parents' Perspectives on Communication and AAC Use for Beginning Communicators on the Autism Spectrum.

Laubscher E, Pope L, Light J Am J Speech Lang Pathol. 2023; 33(2):716-735.

PMID: 38147490 PMC: 11186330. DOI: 10.1044/2023_AJSLP-23-00254.

"It's like a guessing game all the time": parent insights on barriers, supports, and priorities for children with cortical visual impairment and complex communication needs.

McCarty T, Light J Augment Altern Commun. 2023; 39(4):256-269.

PMID: 37158794 PMC: 11267258. DOI: 10.1080/07434618.2023.2206904.

Communication and Language Skills of Autistic Spectrum Disorders in Children and Their Parents' Emotions.

Ibrahimagic A, Patkovic N, Radic B, Hadzic S Mater Sociomed. 2022; 33(4):250-256.

PMID: 35210946 PMC: 8812368. DOI: 10.5455/msm.2021.33.250-256.

Brief Report: Perceptions of Family-Centered Care Across Service Delivery Systems and Types of Caregiver Concerns About Their Toddlers' Development.

Dick C, Ibanez L, DesChamps T, Attar S, Stone W J Autism Dev Disord. 2021; 52(9):4181-4190.

PMID: 34510314 DOI: 10.1007/s10803-021-05248-6.

References

Harris P, Taylor R, Thielke R, Payne J, Gonzalez N, Conde J . Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform. 2008; 42(2):377-81. PMC: 2700030. DOI: 10.1016/j.jbi.2008.08.010. View

Mandak K, Light J . Family-centered services for children with complex communication needs: the practices and beliefs of school-based speech-language pathologists. Augment Altern Commun. 2018; 34(2):130-142. DOI: 10.1080/07434618.2018.1438513. View

Hodgetts S, Nicholas D, Zwaigenbaum L, McConnell D . Parents' and professionals' perceptions of family-centered care for children with autism spectrum disorder across service sectors. Soc Sci Med. 2013; 96:138-46. DOI: 10.1016/j.socscimed.2013.07.012. View

Cridland E, Jones S, Magee C, Caputi P . Family-focused autism spectrum disorder research: a review of the utility of family systems approaches. Autism. 2013; 18(3):213-22. DOI: 10.1177/1362361312472261. View

Kogan M, Strickland B, Blumberg S, Singh G, Perrin J, van Dyck P . A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005-2006. Pediatrics. 2008; 122(6):e1149-58. DOI: 10.1542/peds.2008-1057. View

Edwards A, Brebner C, McCormack P, Macdougall C . "More than blowing bubbles": What parents want from therapists working with children with autism spectrum disorder. Int J Speech Lang Pathol. 2016; 18(5):493-505. DOI: 10.3109/17549507.2015.1112835. View

Kent-Walsh J, Stark C, Binger C . Tales from school trenches: AAC service-delivery and professional expertise. Semin Speech Lang. 2008; 29(2):146-54. DOI: 10.1055/s-2008-1079128. View

Iacono T, Cameron M . Australian speech-language pathologists' perceptions and experiences of augmentative and alternative communication in early childhood intervention. Augment Altern Commun. 2009; 25(4):236-49. DOI: 10.3109/07434610903322151. View

Dyke P, Buttigieg P, Blackmore A, Ghose A . Use of the measure of process of care for families (MPOC-56) and service providers (MPOC-SP) to evaluate family-centred services in a paediatric disability setting. Child Care Health Dev. 2006; 32(2):167-76. DOI: 10.1111/j.1365-2214.2006.00604.x. View

10.

MINUCHIN P . Families and individual development: provocations from the field of family therapy. Child Dev. 1985; 56(2):289-302. View

11.

McNaughton D, Rackensperger T, Benedek-Wood E, Krezman C, Williams M, Light J . "A child needs to be given a chance to succeed": parents of individuals who use AAC describe the benefits and challenges of learning AAC technologies. Augment Altern Commun. 2008; 24(1):43-55. DOI: 10.1080/07434610701421007. View

12.

Schwartz H, Drager K . Training and knowledge in autism among speech-language pathologists: a survey. Lang Speech Hear Serv Sch. 2007; 39(1):66-77. DOI: 10.1044/0161-1461(2008/007). View

13.

Dunst C, Trivette C, Hamby D . Meta-analysis of family-centered helpgiving practices research. Ment Retard Dev Disabil Res Rev. 2007; 13(4):370-8. DOI: 10.1002/mrdd.20176. View

14.

Crais E, Roy V, Free K . Parents' and professionals' perceptions of the implementation of family-centered practices in child assessments. Am J Speech Lang Pathol. 2006; 15(4):365-77. DOI: 10.1044/1058-0360(2006/034). View

15.

Perrin E, Lewkowicz C, YOUNG M . Shared vision: concordance among fathers, mothers, and pediatricians about unmet needs of children with chronic health conditions. Pediatrics. 2000; 105(1 Pt 3):277-85. View

16.

Bellin M, Osteen P, Heffernan C, Levy J, Snyder-Vogel M . Parent and health care professional perspectives on family-centered care for children with special health care needs: are we on the same page?. Health Soc Work. 2012; 36(4):281-90. DOI: 10.1093/hsw/36.4.281. View

17.

Volkmar F, Pauls D . Autism. Lancet. 2003; 362(9390):1133-41. DOI: 10.1016/S0140-6736(03)14471-6. View

18.

Pappas N, McLeod S, McAllister L, McKinnon D . Parental involvement in speech intervention: a national survey. Clin Linguist Phon. 2008; 22(4-5):335-44. DOI: 10.1080/02699200801919737. View

19.

Dickens K, Matthews L, Thompson J . Parent and service providers' perceptions regarding the delivery of family-centred paediatric rehabilitation services in a children's hospital. Child Care Health Dev. 2010; 37(1):64-73. DOI: 10.1111/j.1365-2214.2010.01125.x. View

20.

Ratcliff A, Koul R, Lloyd L . Preparation in augmentative and alternative communication: an update for speech-language pathology training. Am J Speech Lang Pathol. 2008; 17(1):48-59. DOI: 10.1044/1058-0360(2008/005). View