Transition from Pediatric to Adult Medical Care - A Survey in Young Persons with Inflammatory Bowel Disease

Overview

Journal PLoS One

Specialties General Medicine
Science

Date 2017 May 26

PMID 28542322

Citations 7

Authors

Antje Timmer

Jenny Peplies

Max Westphal

Birgit Kaltz

Antje Ballauff

Martin Classen

Martin W Laass

Sibylle Koletzko

Affiliations

Soon will be listed here.

Abstract

Background: Transition to adult health services is a vulnerable phase in young persons with chronic disease. We describe how young persons with inflammatory bowel disease in Germany and Austria experience care during the transitional age, focusing on differences by type of provider (pediatric vs. adult specialist, no specialist).

Methods: This was a follow up survey in patients previously registered with a pediatric IBD registry. Patients aged 15 to 25 received a postal questionnaire, including a measure of health care experience and satisfaction. Descriptive analyses were stratified by age. Sub-analyses in the 18-20 year age group compared health care experience by type of provider. Determinants of early or late transfer were examined using multinomial logistic regression.

Results: 619 patients responded to the survey; 605 questionnaires were available for analysis. Usual age of completing transition was 18. Earlier transfer was more common with low parental SES (OR 1.8, 95% CI 0.7 to 4.6), and less common with advanced schooling (OR 0.5, 95% CI 0.2 to 1.2). Structured transition was uncommon. 48% of the respondents had not received any preceding transition advice. Overall satisfaction with IBD care was high, especially with respect to interpersonal aspects, but less so in aspects of continuity of care.

Conclusions: Despite high overall patient satisfaction, relevant deficiencies in transitional care were documented. Some of these were associated with lower parental social status. Differences in health care satisfaction by type of provider (adult vs. pediatric) were small.

Citing Articles

Letting go/ moving on: A scoping review of relational effects on transition to adult care.

Shanske S, Arnold J, Bond J, Cuadra J, Hayden C, Helfand L Health Care Transit. 2024; 2:100068.

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The Transitioning From Pediatric to Adult Inflammatory Bowel Disease Services: A Qualitative Study of Adolescents and Their Parents.

Bakry M, Hoffmann P, Prematunga R, Keightley P, Subramaniam K Gastroenterology Res. 2024; 17(3):146-149.

PMID: 38993546 PMC: 11236337. DOI: 10.14740/gr1724.

Pediatric to Adult Transition in Inflammatory Bowel Disease: Consensus Guidelines for Australia and New Zealand.

Vernon-Roberts A, Chan P, Christensen B, Havrlant R, Giles E, Williams A Inflamm Bowel Dis. 2024; 31(2):563-578.

PMID: 38701328 PMC: 11808574. DOI: 10.1093/ibd/izae087.

How Families Manage the Complex Medical Needs of Their Children with Duplication Syndrome.

John Cherian D, Ta D, Smith J, Downs J, Leonard H Children (Basel). 2023; 10(7).

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Transition of Chronic Pediatric Nephrological Patients to Adult Care Excluding Patients on Renal Replacement Therapy with Literature Review.

Mocnik M, Golob Jancic S, Marcun Varda N Children (Basel). 2022; 9(7).

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