The Use of NHS Patient Data: Report by the National Data Guardian for Health and Care

Overview

Journal Br J Gen Pract

Specialty Public Health

Date 2017 Jan 28

PMID 28126855

Citations 4

Authors

Nigel Mathers

Ralph Sullivan

Arjun Dhillon

Imran Rafi

Amelia Bell

Affiliations

Soon will be listed here.

Citing Articles

Sharing whilst caring: solidarity and public trust in a data-driven healthcare system.

Horn R, Kerasidou A BMC Med Ethics. 2020; 21(1):110.

PMID: 33143692 PMC: 7607840. DOI: 10.1186/s12910-020-00553-8.

Beyond convenience: practical considerations with using routine health data for evaluations.

Watson-Grant S, Sutherland E, Xiong K, Thomas J Perspect Public Health. 2020; 141(3):129-130.

PMID: 33000684 PMC: 8142118. DOI: 10.1177/1757913920944196.

Share and protect our health data: an evidence based approach to rare disease patients' perspectives on data sharing and data protection - quantitative survey and recommendations.

Courbier S, Dimond R, Bros-Facer V Orphanet J Rare Dis. 2019; 14(1):175.

PMID: 31300010 PMC: 6625078. DOI: 10.1186/s13023-019-1123-4.

Taking patient involvement seriously: a critical ethical analysis of participatory approaches in data-intensive medical research.

Beier K, Schweda M, Schicktanz S BMC Med Inform Decis Mak. 2019; 19(1):90.

PMID: 31023321 PMC: 6482526. DOI: 10.1186/s12911-019-0799-7.

References

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van Staa T, Goldacre B, Buchan I, Smeeth L . Big health data: the need to earn public trust. BMJ. 2016; 354:i3636. DOI: 10.1136/bmj.i3636. View

Chan T, Di Iorio C, de Lusignan S, Lo Russo D, Kuziemsky C, Liaw S . UK National Data Guardian for Health and Care's Review of Data Security: Trust, better security and opt-outs. J Innov Health Inform. 2017; 23(3):627-632. DOI: 10.14236/jhi.v23i3.909. View