Representational Approach: A Conceptual Framework to Guide Patient Education Research and Practice
Overview
Affiliations
Illness representations are cognitive structures that individuals rely on to understand and explain their illnesses and associated symptoms. The Representational Approach (RA) to patient education offers a theoretically based, clinically useful model that can support oncology nurses to develop a shared understanding of patients' illness representations to collaboratively develop highly personalized plans for symptom management and other important self-management behaviors. This article discusses theoretical underpinnings, practical applications, challenges, and future directions for incorporating illness representations and the RA in clinical and research endeavors.
Illness representation in patients with multiple sclerosis: A preliminary narrative medicine study.
Paolucci T, Reho M, Ciacchella C, Veneziani G, Santoro I, Fiorentino G Mult Scler J Exp Transl Clin. 2024; 10(3):20552173241271755.
PMID: 39329093 PMC: 11425788. DOI: 10.1177/20552173241271755.
Donovan H, Sereika S, Wenzel L, Edwards R, Knapp J, Hughes S J Clin Oncol. 2022; 40(13):1464-1473.
PMID: 35130043 PMC: 9061156. DOI: 10.1200/JCO.21.00656.
Boele F, Weimer J, Marsland A, Armstrong T, Given C, Drappatz J Support Care Cancer. 2021; 30(3):2059-2068.
PMID: 34655326 PMC: 10411320. DOI: 10.1007/s00520-021-06555-5.