Social Support Plays a Role in the Attitude That People Have Towards Taking an Active Role in Medical Decision-making

Overview

Journal BMC Health Serv Res

Publisher Biomed Central

Specialty Health Services

Date 2016 Sep 23

PMID 27655113

Citations 11

Authors

Anne E M Brabers

Judith D de Jong

Peter P Groenewegen

Liset van Dijk

Affiliations

Soon will be listed here.

Abstract

Background: There is a growing emphasis towards including patients in medical decision-making. However, not all patients are actively involved in such decisions. Research has so far focused mainly on the influence of patient characteristics on preferences for active involvement. However, it can be argued that a patient's social context has to be taken into account as well, because social norms and resources affect behaviour. This study aims to examine the role of social resources, in the form of the availability of informational and emotional support, on the attitude towards taking an active role in medical decision-making.

Methods: A questionnaire was sent to members of the Dutch Health Care Consumer Panel (response 70 %; n = 1300) in June 2013. A regression model was then used to estimate the relation between medical and lay informational support and emotional support and the attitude towards taking an active role in medical decision-making.

Results: Availability of emotional support is positively related to the attitude towards taking an active role in medical decision-making only in people with a low level of education, not in persons with a middle and high level of education. The latter have a more positive attitude towards taking an active role in medical decision-making, irrespective of the level of emotional support available. People with better access to medical informational support have a more positive attitude towards taking an active role in medical decision-making; but no significant association was found for lay informational support.

Conclusions: This study shows that social resources are associated with the attitude towards taking an active role in medical decision-making. Strategies aimed at increasing patient involvement have to address this.

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References

Say R, Murtagh M, Thomson R . Patients' preference for involvement in medical decision making: a narrative review. Patient Educ Couns. 2006; 60(2):102-14. DOI: 10.1016/j.pec.2005.02.003. View

Flynn K, Smith M, Vanness D . A typology of preferences for participation in healthcare decision making. Soc Sci Med. 2006; 63(5):1158-69. PMC: 1637042. DOI: 10.1016/j.socscimed.2006.03.030. View

Shonna Yin H, Dreyer B, Vivar K, MacFarland S, van Schaick L, Mendelsohn A . Perceived barriers to care and attitudes towards shared decision-making among low socioeconomic status parents: role of health literacy. Acad Pediatr. 2012; 12(2):117-24. PMC: 3747780. DOI: 10.1016/j.acap.2012.01.001. View

M van de Bovenkamp H, Trappenburg M, Grit K . Patient participation in collective healthcare decision making: the Dutch model. Health Expect. 2009; 13(1):73-85. PMC: 5060518. DOI: 10.1111/j.1369-7625.2009.00567.x. View

Verlinde E, De Laender N, De Maesschalck S, Deveugele M, Willems S . The social gradient in doctor-patient communication. Int J Equity Health. 2012; 11:12. PMC: 3317830. DOI: 10.1186/1475-9276-11-12. View

Chewning B, Bylund C, Shah B, Arora N, Gueguen J, Makoul G . Patient preferences for shared decisions: a systematic review. Patient Educ Couns. 2011; 86(1):9-18. PMC: 4530615. DOI: 10.1016/j.pec.2011.02.004. View

Jansen J, van Weert J, Wijngaards-de Meij L, van Dulmen S, Heeren T, Bensing J . The role of companions in aiding older cancer patients to recall medical information. Psychooncology. 2009; 19(2):170-9. DOI: 10.1002/pon.1537. View

Barton J, Trupin L, Tonner C, Imboden J, Katz P, Schillinger D . English language proficiency, health literacy, and trust in physician are associated with shared decision making in rheumatoid arthritis. J Rheumatol. 2014; 41(7):1290-7. PMC: 4286372. DOI: 10.3899/jrheum.131350. View

Clayman M, Roter D, Wissow L, Bandeen-Roche K . Autonomy-related behaviors of patient companions and their effect on decision-making activity in geriatric primary care visits. Soc Sci Med. 2005; 60(7):1583-91. DOI: 10.1016/j.socscimed.2004.08.004. View

10.

Charles C, Gafni A, Whelan T . Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med. 1997; 44(5):681-92. DOI: 10.1016/s0277-9536(96)00221-3. View

11.

Guadagnoli E, Ward P . Patient participation in decision-making. Soc Sci Med. 1998; 47(3):329-39. DOI: 10.1016/s0277-9536(98)00059-8. View

12.

Charles C, Gafni A, Whelan T . Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med. 1999; 49(5):651-61. DOI: 10.1016/s0277-9536(99)00145-8. View

13.

Stacey D, Bennett C, Barry M, Col N, Eden K, Holmes-Rovner M . Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2011; (10):CD001431. DOI: 10.1002/14651858.CD001431.pub3. View

14.

Arora N, McHorney C . Patient preferences for medical decision making: who really wants to participate?. Med Care. 2000; 38(3):335-41. DOI: 10.1097/00005650-200003000-00010. View

15.

Umberson D, Montez J . Social relationships and health: a flashpoint for health policy. J Health Soc Behav. 2010; 51 Suppl:S54-66. PMC: 3150158. DOI: 10.1177/0022146510383501. View

16.

Cohen S . Social relationships and health. Am Psychol. 2004; 59(8):676-684. DOI: 10.1037/0003-066X.59.8.676. View

17.

Wolff J, Roter D . Family presence in routine medical visits: a meta-analytical review. Soc Sci Med. 2011; 72(6):823-31. PMC: 3070824. DOI: 10.1016/j.socscimed.2011.01.015. View

18.

Frosch D, Kaplan R . Shared decision making in clinical medicine: past research and future directions. Am J Prev Med. 1999; 17(4):285-94. DOI: 10.1016/s0749-3797(99)00097-5. View

19.

van der Weijden T, Veenendaal H, Timmermans D . Shared decision-making in the Netherlands--current state and future perspectives. Z Arztl Fortbild Qualitatssich. 2007; 101(4):241-6. DOI: 10.1016/j.zgesun.2007.02.022. View

20.

van den Brink-Muinen A, van Dulmen S, de Haes H, Visser A, Schellevis F, Bensing J . Has patients' involvement in the decision-making process changed over time?. Health Expect. 2006; 9(4):333-42. PMC: 5060368. DOI: 10.1111/j.1369-7625.2006.00413.x. View