Home Care for Children with Multiple Complex Chronic Conditions at the End of Life: The Choice of Hospice Versus Home Health

Overview

Journal Home Health Care Serv Q

Publisher Routledge

Specialty Health Services

Date 2016 Jul 8

PMID 27383451

Citations 7

Authors

Lisa C Lindley

Sandra J Mixer

Jennifer W Mack

Affiliations

Soon will be listed here.

Abstract

Families desire to bring their children home at end of life, and this creates a variety of unique care needs at home. This study analyzed the child and family factors associated with hospice versus home health care use in the last year of life among children with multiple complex chronic conditions. Using the Andersen Behavioral Healthcare Utilization Model, the predisposing, enabling, and need factors of the child and family were shown to be significant predictors of hospice and home health care use. Hospice and home health care have advantages, and families may wish to use the service that best fits their needs.

Citing Articles

Years of life lost: A call to achieve equitable end-of-life care among children.

Jawed A Health Promot Perspect. 2023; 12(4):350-354.

PMID: 36852200 PMC: 9958231. DOI: 10.34172/hpp.2022.45.

Using a route planner to optimize door-to-door visits for a pediatric home-hospitalization program: Feasibility study.

Batlle A, Boada I, Thio-Henestrosa S, Fernandez de Sevilla M, Garcia-Garcia J Front Pediatr. 2022; 10:928273.

PMID: 35935375 PMC: 9353305. DOI: 10.3389/fped.2022.928273.

A National Study of Healthcare Service Patterns at the End of Life Among Children With Cardiac Disease.

Lindley L, Svynarenko R, Mooney-Doyle K, Mendola A, Naumann W, Harris R J Cardiovasc Nurs. 2021; 38(1):44-51.

PMID: 34935739 PMC: 9209569. DOI: 10.1097/JCN.0000000000000875.

Patterns of Health Care Services During Pediatric Concurrent Hospice Care: A National Study.

Lindley L, Svynarenko R, Mooney-Doyle K, Mendola A, Naumann W, Keim-Malpass J Am J Hosp Palliat Care. 2021; 39(3):282-288.

PMID: 34032124 PMC: 8613297. DOI: 10.1177/10499091211018661.

Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children.

Laird J, Cozad M, Keim-Malpass J, Mack J, Lindley L Health Aff (Millwood). 2020; 39(10):1770-1775.

PMID: 33017257 PMC: 7874853. DOI: 10.1377/hlthaff.2020.01192.

References

Hennessy S, Leonard C, Palumbo C, Newcomb C, Bilker W . Quality of Medicaid and Medicare data obtained through Centers for Medicare and Medicaid Services (CMS). Med Care. 2007; 45(12):1216-20. DOI: 10.1097/MLR.0b013e318148435a. View

Cohen E, Berry J, Camacho X, Anderson G, Wodchis W, Guttmann A . Patterns and costs of health care use of children with medical complexity. Pediatrics. 2012; 130(6):e1463-70. PMC: 4528341. DOI: 10.1542/peds.2012-0175. View

Kassam A, Skiadaresis J, Alexander S, Wolfe J . Parent and clinician preferences for location of end-of-life care: home, hospital or freestanding hospice?. Pediatr Blood Cancer. 2013; 61(5):859-64. DOI: 10.1002/pbc.24872. View

Osterman M, Kochanek K, MacDorman M, Strobino D, Guyer B . Annual summary of vital statistics: 2012-2013. Pediatrics. 2015; 135(6):1115-25. PMC: 4750477. DOI: 10.1542/peds.2015-0434. View

Lindley L . Determinants of access to pediatric hospice care: A conceptual model. J Hosp Palliat Nurs. 2015; 17(2):113-118. PMC: 4427910. DOI: 10.1097/NJH.0000000000000132. View

Lindley L, Mark B, Lee S, Domino M, Song M, Jacobson Vann J . Factors associated with the provision of hospice care for children. J Pain Symptom Manage. 2012; 45(4):701-11. PMC: 4019999. DOI: 10.1016/j.jpainsymman.2012.03.010. View

Lassman D, Hartman M, Washington B, Andrews K, Catlin A . US health spending trends by age and gender: selected years 2002-10. Health Aff (Millwood). 2014; 33(5):815-22. DOI: 10.1377/hlthaff.2013.1224. View

Jenkins T, Chapman K, Harshbarger D, Townsend J . Hospice use among cancer decedents in Alabama, 2002-2005. Prev Chronic Dis. 2009; 6(4):A119. PMC: 2774633. View

Senft D . Home health and hospice face-to-face encounter visits. Geriatr Nurs. 2011; 32(6):450-2. DOI: 10.1016/j.gerinurse.2011.10.002. View

10.

Lindley L, Lyon M . A profile of children with complex chronic conditions at end of life among Medicaid beneficiaries: implications for health care reform. J Palliat Med. 2013; 16(11):1388-93. PMC: 4150358. DOI: 10.1089/jpm.2013.0099. View

11.

Lyon M, Williams P, Woods E, Hutton N, Butler A, Sibinga E . Do-not-resuscitate orders and/or hospice care, psychological health, and quality of life among children/adolescents with acquired immune deficiency syndrome. J Palliat Med. 2008; 11(3):459-69. PMC: 2782484. DOI: 10.1089/jpm.2007.0148. View

12.

Cawkwell P, Gardner S, Weitzman M . Persistent racial and ethnic differences in location of death for children with cancer. Pediatr Blood Cancer. 2015; 62(8):1403-8. DOI: 10.1002/pbc.25479. View

13.

Cesta T . Case management insider. Home health care--a key component of discharge planning. Hosp Case Manag. 2014; 22(11):151-4. View

14.

Park-Lee E, Decker F . Comparison of home health and hospice care agencies by organizational characteristics and services provided: United States, 2007. Natl Health Stat Report. 2010; (30):1-23. View

15.

Resnick H, Hickman S, Foster G . Documentation of advance directives among home health and hospice patients: United States, 2007. Am J Hosp Palliat Care. 2011; 29(1):26-35. DOI: 10.1177/1049909111407627. View

16.

Srivastava R, Stone B, Murphy N . Hospitalist care of the medically complex child. Pediatr Clin North Am. 2005; 52(4):1165-87, x. DOI: 10.1016/j.pcl.2005.03.007. View

17.

Feudtner C, Christakis D, Connell F . Pediatric deaths attributable to complex chronic conditions: a population-based study of Washington State, 1980-1997. Pediatrics. 2000; 106(1 Pt 2):205-9. View

18.

Weber D, Brown V, Huslage K, Sickbert-Bennett E, Rutala W . Device-related infections in home health care and hospice: infection rates, 1998-2008. Infect Control Hosp Epidemiol. 2009; 30(10):1022-4. DOI: 10.1086/605641. View

19.

Randall-David E, Wright J, Porterfield D, Lesser G . Barriers to cancer pain management: home-health and hospice nurses and patients. Support Care Cancer. 2003; 11(10):660-5. DOI: 10.1007/s00520-003-0497-x. View

20.

Lindley L, Mark B, Lee S . Providing hospice care to children and young adults: A descriptive study of end-of-life organizations. J Hosp Palliat Nurs. 2010; 11(6):315-323. PMC: 2894529. DOI: 10.1097/NJH.0b013e3181bcfd62. View