Fertility Concerns Among Child and Adolescent Cancer Survivors and Their Parents: A Qualitative Analysis

Overview

Journal J Psychosoc Oncol

Publisher Routledge

Specialty Oncology

Date 2016 Jun 9

PMID 27269305

Citations 43

Authors

Sarah J Ellis

Claire E Wakefield

Jordana K McLoone

Eden G Robertson

Richard J Cohn

Affiliations

Soon will be listed here.

Abstract

Cancer diagnoses and treatment may have long-term effects on fertility. Semistructured interviews were administered to young cancer survivors (<20 years) and their parents (n = 97). Fertility related concerns were reported by 45 participants (46.4%). Themes included: distress regarding potential infertility; the effect of infertility on future relationships, self-esteem, and miscommunications/confusion about fertility status; access to fertility testing; and preservation options. Parents also reported challenges regarding how and when it was developmentally appropriate to talk to their children about fertility. The development of comprehensive consumer-driven approaches to managing the fertility concerns of young survivors and their families is essential.

Citing Articles

Fertility preservation in Malaysian pediatric cohort: a survey of healthcare providers' knowledge, practice, attitude, perceptions and barriers.

Ali A, Lee Y, Alias H, Zainuddin A Front Pediatr. 2024; 12:1419515.

PMID: 39363970 PMC: 11446869. DOI: 10.3389/fped.2024.1419515.

Triadic communication with teenagers and young adults with cancer: a systematic literature review - 'make me feel like I'm not the third person'.

Critoph D, Taylor R, Spathis A, Duschinsky R, Hatcher H, Clyne E BMJ Open. 2024; 14(2):e080024.

PMID: 38367963 PMC: 10875529. DOI: 10.1136/bmjopen-2023-080024.

To understand the experiences, needs, and preferences for supportive care, among children and adolescents (0-19 years) diagnosed with cancer: a systematic review of qualitative studies.

Paterson C, Kavanagh P, Bacon R, Turner M, Moore M, Barratt M J Cancer Surviv. 2023; .

PMID: 38151586 DOI: 10.1007/s11764-023-01508-9.

"Queer Insights": Considerations and Challenges for Assessing Sex, Gender Identity, and Sexual Orientation in Oncofertility Research.

Levin N, Zhang A, Kattari S, Moravek M, Zebrack B Ann LGBTQ Public Popul Health. 2023; 3(2):111-128.

PMID: 38078047 PMC: 10704859. DOI: 10.1891/lgbtq-2021-0015.

Fertility Preservation in Children and Adolescents during Oncological Treatment-A Review of Healthcare System Factors and Attitudes of Patients and Their Caregivers.

Pawlowski P, Zietara K, Michalczyk J, Fryze M, Buchacz A, Zaucha-Prazmo A Cancers (Basel). 2023; 15(17).

PMID: 37686669 PMC: 10487203. DOI: 10.3390/cancers15174393.