Social/economic Costs and Health-related Quality of Life in Patients with Rare Diseases in Europe

Overview

Journal Eur J Health Econ

Specialty Health Services

Date 2016 Mar 30

PMID 27023708

Citations 51

Authors

Julio Lopez-Bastida

Juan Oliva-Moreno

Renata Linertova

Pedro Serrano-Aguilar

Affiliations

Soon will be listed here.

Citing Articles

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Redefining the approach to rare diseases: the experience of "Casa dos Raros" in Brazil.

Giugliani R, de Oliveira B, Guarana B, Tonon T, Trapp F, da Costa F J Community Genet. 2025; .

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Rao A, Yabumoto M, Ward-Lev E, Miller E, Naik H, Halley M Genet Med Open. 2024; 2:101889.

PMID: 39669621 PMC: 11613748. DOI: 10.1016/j.gimo.2024.101889.

Economic burden and health-related quality of life in patients with epidermolysis bullosa in Spain.

Aranda-Reneo I, Oliva-Moreno J, Pena-Longobardo L, Villar-Hernandez A, Lopez-Bastida J Orphanet J Rare Dis. 2024; 19(1):352.

PMID: 39313783 PMC: 11421099. DOI: 10.1186/s13023-024-03328-1.

A scoping review of health literacy in rare disorders: key issues and research directions.

Stenberg U, Westfal L, Dybesland Rosenberger A, Orstavik K, Flink M, Holmen H Orphanet J Rare Dis. 2024; 19(1):328.

PMID: 39243094 PMC: 11380335. DOI: 10.1186/s13023-024-03332-5.

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