Correlates of Family Involvement Before and During Medical Visits Among Older Adults with High-risk Diabetes

Overview

Journal Diabet Med

Specialty Endocrinology

Date 2015 Dec 8

PMID 26642179

Citations 6

Authors

M R Janevic

J D Piette

D P Ratz

H M Kim

A-M Rosland

Affiliations

Soon will be listed here.

Abstract

Aims: To examine the characteristics of patients with diabetes who regularly receive help from a supporter in preparing for and attending medical visits, and the association between this help and clinical risk factors for diabetes complications.

Methods: We linked survey data about family involvement for patients in the Veterans Health Administration system with poorly controlled Type 2 diabetes (n = 588; mean 67 years; 97% male) with health record data on blood pressure, glycaemic control and prescription-fill gaps. We used multivariable regression to assess whether supporter presence and, among patients with supporters, supporter role (visit preparation, accompaniment to medical visit or no involvement) were associated with concurrent trends in clinical risk factors over 2 years, adjusting for sociodemographic and health characteristics.

Results: Most patients (78%) had a main health supporter; of these, more had regular support for preparing for appointments (69%) than were regularly accompanied to them (45%). Patients with preparation help only were younger and more educated than accompanied patients. Support presence and type was not significantly associated with clinical risk factors.

Conclusions: Family help preparing for appointments was common among these patients with high-risk diabetes. In its current form, family support for medical visits may not affect clinical factors in the short term. Supporters helping patients engage in medical visits may need training and assistance to have an impact on the clinical trajectory of patients with diabetes.

Citing Articles

Strategies and sacrifices of family caregiving in the Somali-American community: a qualitative study.

Suleiman K, Lightfoot E, Moone R BMC Health Serv Res. 2024; 24(1):1186.

PMID: 39367423 PMC: 11453006. DOI: 10.1186/s12913-024-11543-6.

Effectiveness of a Health Coaching Intervention for Patient-Family Dyads to Improve Outcomes Among Adults With Diabetes: A Randomized Clinical Trial.

Rosland A, Piette J, Trivedi R, Lee A, Stoll S, Youk A JAMA Netw Open. 2022; 5(11):e2237960.

PMID: 36374502 PMC: 9664266. DOI: 10.1001/jamanetworkopen.2022.37960.

Perceived Social Support and its Effects on Treatment Compliance and Quality of Life in Cardiac Patients.

Wenn P, Meshoyrer D, Barber M, Ghaffar A, Razka M, Jose S J Patient Exp. 2022; 9:23743735221074170.

PMID: 35141401 PMC: 8819762. DOI: 10.1177/23743735221074170.

Autonomy support from informal health supporters: links with self-care activities, healthcare engagement, metabolic outcomes, and cardiac risk among Veterans with type 2 diabetes.

Lee A, Heisler M, Trivedi R, Leukel P, Mor M, Rosland A J Behav Med. 2020; 44(2):241-252.

PMID: 33247416 PMC: 8744428. DOI: 10.1007/s10865-020-00196-5.

Diabetes self-management and glycemic control: The role of autonomy support from informal health supporters.

Lee A, Piette J, Heisler M, Janevic M, Rosland A Health Psychol. 2019; 38(2):122-132.

PMID: 30652911 PMC: 6442463. DOI: 10.1037/hea0000710.

References

Clayman M, Roter D, Wissow L, Bandeen-Roche K . Autonomy-related behaviors of patient companions and their effect on decision-making activity in geriatric primary care visits. Soc Sci Med. 2005; 60(7):1583-91. DOI: 10.1016/j.socscimed.2004.08.004. View

Chew L, Griffin J, Partin M, Noorbaloochi S, Grill J, Snyder A . Validation of screening questions for limited health literacy in a large VA outpatient population. J Gen Intern Med. 2008; 23(5):561-6. PMC: 2324160. DOI: 10.1007/s11606-008-0520-5. View

Rosland A, Piette J, Choi H, Heisler M . Family and friend participation in primary care visits of patients with diabetes or heart failure: patient and physician determinants and experiences. Med Care. 2010; 49(1):37-45. PMC: 3712763. DOI: 10.1097/MLR.0b013e3181f37d28. View

Rosland A, Heisler M, Piette J . The impact of family behaviors and communication patterns on chronic illness outcomes: a systematic review. J Behav Med. 2011; 35(2):221-39. PMC: 3785075. DOI: 10.1007/s10865-011-9354-4. View

Hess L, Raebel M, Conner D, Malone D . Measurement of adherence in pharmacy administrative databases: a proposal for standard definitions and preferred measures. Ann Pharmacother. 2006; 40(7-8):1280-88. DOI: 10.1345/aph.1H018. View

Wolff J, Roter D . Family presence in routine medical visits: a meta-analytical review. Soc Sci Med. 2011; 72(6):823-31. PMC: 3070824. DOI: 10.1016/j.socscimed.2011.01.015. View

Henry S, Rook K, Stephens M, Franks M . Spousal undermining of older diabetic patients' disease management. J Health Psychol. 2013; 18(12):1550-61. PMC: 4506743. DOI: 10.1177/1359105312465913. View

Rao J, Anderson L, Inui T, Frankel R . Communication interventions make a difference in conversations between physicians and patients: a systematic review of the evidence. Med Care. 2007; 45(4):340-9. DOI: 10.1097/01.mlr.0000254516.04961.d5. View

Greene J, Hibbard J . Why does patient activation matter? An examination of the relationships between patient activation and health-related outcomes. J Gen Intern Med. 2011; 27(5):520-6. PMC: 3326094. DOI: 10.1007/s11606-011-1931-2. View

10.

Fisher L, Glasgow R, Mullan J, Skaff M, Polonsky W . Development of a brief diabetes distress screening instrument. Ann Fam Med. 2008; 6(3):246-52. PMC: 2384991. DOI: 10.1370/afm.842. View

11.

Charlson M, Pompei P, Ales K, MacKenzie C . A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. J Chronic Dis. 1987; 40(5):373-83. DOI: 10.1016/0021-9681(87)90171-8. View

12.

Steiner J, Prochazka A . The assessment of refill compliance using pharmacy records: methods, validity, and applications. J Clin Epidemiol. 1997; 50(1):105-16. DOI: 10.1016/s0895-4356(96)00268-5. View

13.

Wolff J, Spillman B . Older adults receiving assistance with physician visits and prescribed medications and their family caregivers: prevalence, characteristics, and hours of care. J Gerontol B Psychol Sci Soc Sci. 2014; 69 Suppl 1:S65-72. PMC: 4303066. DOI: 10.1093/geronb/gbu119. View

14.

Franks M, Stephens M, Rook K, Franklin B, Keteyian S, Artinian N . Spouses' provision of health-related support and control to patients participating in cardiac rehabilitation. J Fam Psychol. 2006; 20(2):311-8. DOI: 10.1037/0893-3200.20.2.311. View

15.

Kroenke K, Spitzer R, Williams J . The Patient Health Questionnaire-2: validity of a two-item depression screener. Med Care. 2003; 41(11):1284-92. DOI: 10.1097/01.MLR.0000093487.78664.3C. View

16.

Wolff J, Roter D, Barron J, Boyd C, Leff B, Finucane T . A tool to strengthen the older patient-companion partnership in primary care: results from a pilot study. J Am Geriatr Soc. 2014; 62(2):312-9. PMC: 3945188. DOI: 10.1111/jgs.12639. View

17.

Haywood K, Marshall S, Fitzpatrick R . Patient participation in the consultation process: a structured review of intervention strategies. Patient Educ Couns. 2006; 63(1-2):12-23. DOI: 10.1016/j.pec.2005.10.005. View

18.

Aikens J, Trivedi R, Aron D, Piette J . Integrating support persons into diabetes telemonitoring to improve self-management and medication adherence. J Gen Intern Med. 2014; 30(3):319-26. PMC: 4351288. DOI: 10.1007/s11606-014-3101-9. View

19.

Kinnersley P, Edwards A, Hood K, Ryan R, Prout H, Cadbury N . Interventions before consultations to help patients address their information needs by encouraging question asking: systematic review. BMJ. 2008; 337:a485. PMC: 2500196. DOI: 10.1136/bmj.a485. View

20.

Cene C, Haymore L, Lin F, Laux J, Jones C, Wu J . Family member accompaniment to routine medical visits is associated with better self-care in heart failure patients. Chronic Illn. 2014; 11(1):21-32. PMC: 8099456. DOI: 10.1177/1742395314532142. View