Connecting the Dots: Linking the National Program of Cancer Registries and the Needs of Survivors and Clinicians

Overview

Journal Am J Prev Med

Specialty Public Health

Date 2015 Nov 23

PMID 26590648

Citations 10

Authors

A Blythe Ryerson

Christie Eheman

Timothy Styles

Randi Rycroft

Claire Snyder

Affiliations

Soon will be listed here.

Abstract

Cancer survivors, the medical community, public health professionals, researchers, and policymakers all need information about newly diagnosed cancer cases and deaths to better understand and address the disease burden. CDC collects cancer data on 96% of the U.S. population through the National Program of Cancer Registries. The National Program of Cancer Registries routinely collects data on all cancer occurrences, deaths, and the types of initial treatment received by the patients, and recently CDC has made advances in its cancer surveillance activities that have direct applicability to cancer survivorship research and care. This article examines CDC's innovative uses of the National Program of Cancer Registries infrastructure and data as a recruitment source for survivorship research studies and behavioral interventions; comparative effectiveness and patient-centered outcomes research; and the collection, consolidation, and dissemination of treatment summaries for cancer survivors and their providers. This paper also discusses long-term, idealistic plans for additional data linkages and sharing among public health, providers, and the cancer survivor through innovative concepts such as patient portals and rapid-learning health care.

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