Ethics Issues in Social Media-based HIV Prevention in Low- and Middle-income Countries

Overview

Journal Camb Q Healthc Ethics

Publisher Cambridge University Press

Specialty Medical Ethics

Date 2015 Jun 11

PMID 26059956

Citations 12

Authors

ChingChe J Chiu

Luis Menacho

Celia Fisher

Sean D Young

Affiliations

Soon will be listed here.

Abstract

Questions have been raised regarding participants' safety and comfort when participating in e-health education programs. Although researchers have begun to explore this issue in the United States, little research has been conducted in low- and middle-income countries, where Internet and social media use is rapidly growing. This article reports on a quantitative study with Peruvian men who have sex with men who had previously participated in the Harnessing Online Peer Education (HOPE) program, a Facebook-based HIV education program. The survey assessed participants' ethics-relevant perspectives during recruitment, consent, intervention, and follow-up.

Citing Articles

WhatsApp-propriate? Exploring "WhatsApp" as a Tool for Research Among Ghanaian Immigrants in the United States.

Aidoo-Frimpong G, Turner D, Collins R, Ajiboye W, Agbemenu K, Nelson L J Racial Ethn Health Disparities. 2023; 11(4):1956-1963.

PMID: 37285049 PMC: 10246539. DOI: 10.1007/s40615-023-01664-9.

Social Media-Based Interventions for Health Behavior Change in Low- and Middle-Income Countries: Systematic Review.

Seiler J, Libby T, Jackson E, Lingappa J, Evans W J Med Internet Res. 2022; 24(4):e31889.

PMID: 35436220 PMC: 9052020. DOI: 10.2196/31889.

Digital Public Health Surveillance Tools for Alcohol Use and HIV Risk Behaviors.

Garett R, Young S AIDS Behav. 2021; 25(Suppl 3):333-338.

PMID: 33730254 PMC: 7966886. DOI: 10.1007/s10461-021-03221-z.

Peer Group Focused eHealth Strategies to Promote HIV Prevention, Testing, and Care Engagement.

Ronen K, Grant E, Copley C, Batista T, Guthrie B Curr HIV/AIDS Rep. 2020; 17(5):557-576.

PMID: 32794071 PMC: 7492479. DOI: 10.1007/s11904-020-00527-w.

Ethical Considerations in HIV eHealth Intervention Research: Implications for Informational Risk in Recruitment, Data Maintenance, and Consent Procedures.

Fisher C, Bragard E, Bloom R Curr HIV/AIDS Rep. 2020; 17(3):180-189.

PMID: 32358768 PMC: 7263316. DOI: 10.1007/s11904-020-00489-z.

References

Winzelberg A, Eppstein D, Eldredge K, Wilfley D, Dasmahapatra R, Dev P . Effectiveness of an Internet-based program for reducing risk factors for eating disorders. J Consult Clin Psychol. 2000; 68(2):346-50. DOI: 10.1037//0022-006x.68.2.346. View

Cornford T, Klecun-Dabrowska E . Ethical perspectives in evaluation of telehealth. Camb Q Healthc Ethics. 2001; 10(2):161-9. DOI: 10.1017/s0963180101002079. View

Oenema A, Brug J, Lechner L . Web-based tailored nutrition education: results of a randomized controlled trial. Health Educ Res. 2002; 16(6):647-60. DOI: 10.1093/her/16.6.647. View

Tate D, Jackvony E, Wing R . Effects of Internet behavioral counseling on weight loss in adults at risk for type 2 diabetes: a randomized trial. JAMA. 2003; 289(14):1833-6. DOI: 10.1001/jama.289.14.1833. View

Vandelanotte C, De Bourdeaudhuij I . Acceptability and feasibility of a computer-tailored physical activity intervention using stages of change: project FAITH. Health Educ Res. 2003; 18(3):304-17. DOI: 10.1093/her/cyf027. View

Kind T, Silber T . Ethical issues in pediatric e-health. Clin Pediatr (Phila). 2004; 43(7):593-9. DOI: 10.1177/000992280404300701. View

Hesse B, Nelson D, Kreps G, Croyle R, Arora N, Rimer B . Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information National Trends Survey. Arch Intern Med. 2005; 165(22):2618-24. DOI: 10.1001/archinte.165.22.2618. View

Bowen A, Horvath K, Williams M . A randomized control trial of Internet-delivered HIV prevention targeting rural MSM. Health Educ Res. 2006; 22(1):120-7. PMC: 2639555. DOI: 10.1093/her/cyl057. View

Pequegnat W, Rosser B, Bowen A, Bull S, DiClemente R, Bockting W . Conducting Internet-based HIV/STD prevention survey research: considerations in design and evaluation. AIDS Behav. 2006; 11(4):505-21. DOI: 10.1007/s10461-006-9172-9. View

10.

Lorig K, Ritter P, Laurent D, Plant K . Internet-based chronic disease self-management: a randomized trial. Med Care. 2006; 44(11):964-71. DOI: 10.1097/01.mlr.0000233678.80203.c1. View

11.

Griffiths K, Christensen H . Internet-based mental health programs: a powerful tool in the rural medical kit. Aust J Rural Health. 2007; 15(2):81-7. DOI: 10.1111/j.1440-1584.2007.00859.x. View

12.

Lucas H . Information and communications technology for future health systems in developing countries. Soc Sci Med. 2008; 66(10):2122-32. DOI: 10.1016/j.socscimed.2008.01.033. View

13.

Merrell R, Doarn C . Ethics in telemedicine research. Telemed J E Health. 2009; 15(2):123-4. DOI: 10.1089/tmj.2009.9992. View

14.

Fleming D, Edison K, Pak H . Telehealth ethics. Telemed J E Health. 2009; 15(8):797-803. DOI: 10.1089/tmj.2009.0035. View

15.

Blaya J, Fraser H, Holt B . E-health technologies show promise in developing countries. Health Aff (Millwood). 2010; 29(2):244-51. DOI: 10.1377/hlthaff.2009.0894. View

16.

Bull S, Breslin L, Wright E, Black S, Levine D, Santelli J . Case study: An ethics case study of HIV prevention research on Facebook: the Just/Us study. J Pediatr Psychol. 2011; 36(10):1082-92. PMC: 3199441. DOI: 10.1093/jpepsy/jsq126. View

17.

Dombrowski S, Sniehotta F, Johnston M, Broom I, Kulkarni U, Brown J . Optimizing acceptability and feasibility of an evidence-based behavioral intervention for obese adults with obesity-related co-morbidities or additional risk factors for co-morbidities: an open-pilot intervention study in secondary care. Patient Educ Couns. 2011; 87(1):108-19. DOI: 10.1016/j.pec.2011.08.003. View

18.

Neuhauser L, Kreps G . Rethinking Communication in the E-health Era. J Health Psychol. 2011; 8(1):7-23. DOI: 10.1177/1359105303008001426. View

19.

Crutzen R, Roosjen J, Poelman J . Using Google Analytics as a process evaluation method for Internet-delivered interventions: an example on sexual health. Health Promot Int. 2012; 28(1):36-42. DOI: 10.1093/heapro/das008. View

20.

Winstead-Derlega C, Rafaly M, Delgado S, Freeman J, Cutitta K, Miles T . A pilot study of delivering peer health messages in an HIV clinic via mobile media. Telemed J E Health. 2012; 18(6):464-9. PMC: 3399111. DOI: 10.1089/tmj.2011.0236. View