Ways to Identify Children with Medical Complexity and the Importance of Why

Overview

Journal J Pediatr

Specialty Pediatrics

Date 2015 Jun 2

PMID 26028285

Citations 50

Authors

Jay G Berry

Matt Hall

Eyal Cohen

Margaret ONeill

Chris Feudtner

Affiliations

Soon will be listed here.

Citing Articles

Qualitative evaluation of a hospital-inpatient service for children with medical complexity.

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Airway Colonization in Children with Medical Complexity: Challenges and Management Strategies.

Fainardi V, Rizzo L, Zambelli G, Berzieri M, Maugeri E, Giacalone E J Clin Med. 2025; 14(3).

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Pediatric complex chronic and life-limiting conditions in the Basque public health system: cross-sectional prevalence study.

Serrano-Pejenaute I, Astigarraga I, Lopez-Bayon J, Sanchez Echaniz J, Sanchez Perez A World J Pediatr. 2025; 21(2):174-182.

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Hospital in-reach family-centred social prescribing pilot for children with neurodisability: mixed methods evaluation with social return on investment analysis.

Gordon L, Hastry M, Bate A, Gordon K, Greaves E, Dimitriadou S BMC Health Serv Res. 2025; 25(1):176.

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Hospital to home transition of children with medical complexities in the Netherlands: current practice.

Haspels H, Knoester H, Jansen N, Ahout I, van Karnebeek C, de Hoog M Eur J Pediatr. 2025; 184(1):122.

PMID: 39779542 PMC: 11711838. DOI: 10.1007/s00431-024-05960-2.

References

Klitzner T, Rabbitt L, Chang R . Benefits of care coordination for children with complex disease: a pilot medical home project in a resident teaching clinic. J Pediatr. 2010; 156(6):1006-1010. DOI: 10.1016/j.jpeds.2009.12.012. View

Gordon J, Colby H, Bartelt T, Jablonski D, Krauthoefer M, Havens P . A tertiary care-primary care partnership model for medically complex and fragile children and youth with special health care needs. Arch Pediatr Adolesc Med. 2007; 161(10):937-44. DOI: 10.1001/archpedi.161.10.937. View

Bethell C, Blumberg S, Stein R, Strickland B, Robertson J, Newacheck P . Taking stock of the CSHCN screener: a review of common questions and current reflections. Acad Pediatr. 2014; 15(2):165-76. PMC: 4778422. DOI: 10.1016/j.acap.2014.10.003. View

Bramlett M, Read D, Bethell C, Blumberg S . Differentiating subgroups of children with special health care needs by health status and complexity of health care needs. Matern Child Health J. 2008; 13(2):151-63. DOI: 10.1007/s10995-008-0339-z. View

Berry J, Hall M, Hall D, Kuo D, Cohen E, Agrawal R . Inpatient growth and resource use in 28 children's hospitals: a longitudinal, multi-institutional study. JAMA Pediatr. 2012; 167(2):170-7. PMC: 3663043. DOI: 10.1001/jamapediatrics.2013.432. View

Burns K, Casey P, Lyle R, Bird T, Fussell J, Robbins J . Increasing prevalence of medically complex children in US hospitals. Pediatrics. 2010; 126(4):638-46. DOI: 10.1542/peds.2009-1658. View

Kuo D, Cohen E, Agrawal R, Berry J, Casey P . A national profile of caregiver challenges among more medically complex children with special health care needs. Arch Pediatr Adolesc Med. 2011; 165(11):1020-6. PMC: 3923457. DOI: 10.1001/archpediatrics.2011.172. View

Simon T, Cawthon M, Stanford S, Popalisky J, Lyons D, Woodcox P . Pediatric medical complexity algorithm: a new method to stratify children by medical complexity. Pediatrics. 2014; 133(6):e1647-54. PMC: 4035595. DOI: 10.1542/peds.2013-3875. View

Kao Y, Kramer J, Liljenquist K, Tian F, Coster W . Comparing the functional performance of children and youths with autism, developmental disabilities, and no disability using the revised pediatric evaluation of disability inventory item banks. Am J Occup Ther. 2012; 66(5):607-16. PMC: 3631423. DOI: 10.5014/ajot.2012.004218. View

10.

Hughes J, Averill R, Eisenhandler J, Goldfield N, Muldoon J, Neff J . Clinical Risk Groups (CRGs): a classification system for risk-adjusted capitation-based payment and health care management. Med Care. 2004; 42(1):81-90. DOI: 10.1097/01.mlr.0000102367.93252.70. View

11.

Ketelaar M, Wassenberg-Severijnen J . Developments in measuring functional activities: where do we go with the PEDI-CAT?. Phys Occup Ther Pediatr. 2010; 30(3):185-9. DOI: 10.3109/01942638.2010.486352. View

12.

Neff J, Clifton H, Popalisky J, Zhou C . Stratification of children by medical complexity. Acad Pediatr. 2014; 15(2):191-6. DOI: 10.1016/j.acap.2014.10.007. View

13.

Feudtner C, Christakis D, Connell F . Pediatric deaths attributable to complex chronic conditions: a population-based study of Washington State, 1980-1997. Pediatrics. 2000; 106(1 Pt 2):205-9. View

14.

Neff J, Sharp V, Muldoon J, Graham J, Myers K . Profile of medical charges for children by health status group and severity level in a Washington State Health Plan. Health Serv Res. 2004; 39(1):73-89. PMC: 1360995. DOI: 10.1111/j.1475-6773.2004.00216.x. View

15.

Kramer J, Coster W, Kao Y, Snow A, Orsmond G . A new approach to the measurement of adaptive behavior: development of the PEDI-CAT for children and youth with autism spectrum disorders. Phys Occup Ther Pediatr. 2011; 32(1):34-47. PMC: 3272487. DOI: 10.3109/01942638.2011.606260. View

16.

Cohen E, Jovcevska V, Kuo D, Mahant S . Hospital-based comprehensive care programs for children with special health care needs: a systematic review. Arch Pediatr Adolesc Med. 2011; 165(6):554-61. PMC: 3932746. DOI: 10.1001/archpediatrics.2011.74. View

17.

Kuo D, Melguizo-Castro M, Goudie A, Nick T, Robbins J, Casey P . Variation in child health care utilization by medical complexity. Matern Child Health J. 2014; 19(1):40-8. PMC: 4201636. DOI: 10.1007/s10995-014-1493-0. View

18.

Dumas H, Fragala-Pinkham M, Feng T, Haley S . A preliminary evaluation of the PEDI-CAT Mobility item bank for children using walking aids and wheelchairs. J Pediatr Rehabil Med. 2012; 5(1):29-35. DOI: 10.3233/PRM-2011-0184. View

19.

Neff J, Sharp V, Popalisky J, Fitzgibbon T . Using medical billing data to evaluate chronically ill children over time. J Ambul Care Manage. 2006; 29(4):283-90. DOI: 10.1097/00004479-200610000-00004. View

20.

Casey P, Lyle R, Bird T, Robbins J, Kuo D, Brown C . Effect of hospital-based comprehensive care clinic on health costs for Medicaid-insured medically complex children. Arch Pediatr Adolesc Med. 2011; 165(5):392-8. DOI: 10.1001/archpediatrics.2011.5. View