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Participant Anonymity in the Internet Age: From Theory to Practice

Overview
Publisher Routledge
Specialty Psychology
Date 2015 Apr 14
PMID 25866484
Citations 6
Authors
Affiliations
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Abstract

Qualitative researchers attempting to protect the identities of their research participants now face a multitude of new challenges due to the wealth of information once considered private but now readily accessible online. We will draw on our research with family members of people with severe brain injury to discuss these challenges in relation to three areas: participant engagement with the mass media, the availability of court transcripts online, and participants' use of social media. We suggest strategies for managing these challenges via disguise, refining informed consent, and discussion with interviewees. In the context of a largely theoretical literature on anonymization, this article offers concrete examples of the dilemmas we faced and will be of illustrative use to other researchers confronting similar challenges.

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References
1.
Whitehead L . Methodological and ethical issues in Internet-mediated research in the field of health: an integrated review of the literature. Soc Sci Med. 2007; 65(4):782-91. DOI: 10.1016/j.socscimed.2007.03.005. View

2.
Saunders B, Kitzinger J, Kitzinger C . Anonymising interview data: challenges and compromise in practice. Qual Res. 2015; 15(5):616-632. PMC: 4582834. DOI: 10.1177/1468794114550439. View

3.
Clough A, Conigrave K . Managing confidentiality in illicit drugs research: ethical and legal lessons from studies in remote Aboriginal communities. Intern Med J. 2008; 38(1):60-3. DOI: 10.1111/j.1445-5994.2007.01539.x. View

4.
Kitzinger J, Kitzinger C . The 'window of opportunity' for death after severe brain injury: family experiences. Sociol Health Illn. 2013; 35(7):1095-112. DOI: 10.1111/1467-9566.12020. View

5.
Kitzinger C, Kitzinger J . Withdrawing artificial nutrition and hydration from minimally conscious and vegetative patients: family perspectives. J Med Ethics. 2014; 41(2):157-60. PMC: 4316914. DOI: 10.1136/medethics-2013-101799. View