Development and Pilot Testing of a Decision Aid for Drivers with Dementia

Overview

Journal BMC Med Inform Decis Mak

Publisher Biomed Central

Specialty Medical Informatics

Date 2014 Mar 20

PMID 24642051

Citations 10

Authors

John Carmody

Jan Potter

Kate Lewis

Sanjay Bhargava

Victoria Traynor

Don Iverson

Affiliations

Soon will be listed here.

Abstract

Background: An increasing number of older adults drive automobiles. Given that the prevalence of dementia is rising, it is necessary to address the issue of driving retirement. The purpose of this study is to evaluate how a self-administered decision aid contributed to decision making about driving retirement by individuals living with dementia. The primary outcome measure in this study was decisional conflict. Knowledge, decision, satisfaction with decision, booklet use and booklet acceptability were the secondary outcome measures.

Methods: A mixed methods approach was adopted. Drivers with dementia were recruited from an Aged Care clinic and a Primary Care center in NSW, Australia. Telephone surveys were conducted before and after participants read the decision aid.

Results: Twelve participants were recruited (mean age 75, SD 6.7). The primary outcome measure, decisional conflict, improved following use of the decision aid. Most participants felt that the decision aid: (i) was balanced; (ii) presented information well; and (iii) helped them decide about driving. In addition, mean knowledge scores improved after booklet use.

Conclusions: This decision aid shows promise as an acceptable, useful and low-cost tool for drivers with dementia. A self-administered decision aid can be used to assist individuals with dementia decide about driving retirement. A randomized controlled trial is underway to evaluate the effectiveness of the tool.

Citing Articles

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'It is empowering and gives people dignity in a very difficult process': A multistage, multimethod qualitative study to understand the views of end users in the cultural adaptation of a dementia and driving decision aid.

Veerhuis N, Merizzi A, Papoulias S, Bradbury C, Sheret K, Traynor V Health Expect. 2024; 27(2):e14006.

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"Is it time to stop driving?": A randomized clinical trial of an online decision aid for older drivers.

Betz M, Hill L, Fowler N, DiGuiseppi C, Han S, Johnson R J Am Geriatr Soc. 2022; 70(7):1987-1996.

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Development and field testing of a decision aid to facilitate shared decision making for adults newly diagnosed with attention-deficit hyperactivity disorder.

Aoki Y, Tsuboi T, Takaesu Y, Watanabe K, Nakayama K, Kinoshita Y Health Expect. 2021; 25(1):366-373.

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Development of a decision support intervention for family members of adults who lack capacity to consent to trials.

Shepherd V, Wood F, Griffith R, Sheehan M, Hood K BMC Med Inform Decis Mak. 2021; 21(1):30.

PMID: 33509169 PMC: 7842028. DOI: 10.1186/s12911-021-01390-4.

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