Psychological Impact on Parents of Children with Congenital Adrenal Hyperplasia: a Study from Sri Lanka

Overview

Journal J Pediatr Endocrinol Metab

Specialties Endocrinology
Pediatrics

Date 2014 Jan 29

PMID 24468601

Citations 7

Authors

K S H de Silva

Piyanjali de Zoysa

W M S Dilanka

B S Dissanayake

Affiliations

Soon will be listed here.

Abstract

Introduction: Congenital adrenal hyperplasia (CAH) is a group of autosomal recessively inherited disorders with significant morbidity. The long-term implications result in immense psychological stress to the parents. This study assessing the psychological impact on the parents is a first in Sri Lanka and one of the few worldwide.

Objective: Document the presence of depressive symptoms in parents of children with CAH.

Design: Study participants were 37 parents of children diagnosed with CAH who were attending an endocrinology clinic of the largest children's hospital in Sri Lanka. Centre for Epidemiological Studies-Depression scale (CES-D), a psychometrically sound scale for assessing depressive symptomatology, was used.

Results: The study classified 59% of the parents as being affected, and the psychological impact on them did not reduce with time.

Conclusion: Parents of children with CAH demonstrated symptoms of depression that did not abate with the passage of time.

Citing Articles

Factors influencing illness uncertainty in parents of children with congenital adrenal hyperplasia in a developing country: A cross-sectional study.

Larasati I, Saktini F, Winarni T, Ediati A, Utari A Belitung Nurs J. 2023; 9(1):54-61.

PMID: 37469639 PMC: 10353655. DOI: 10.33546/bnj.2379.

Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs.

Rautmann L, Witt S, Theiding C, Odenwald B, Nennstiel-Ratzel U, Dorr H Int J Environ Res Public Health. 2023; 20(5).

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Congenital Adrenal Hyperplasia-Current Insights in Pathophysiology, Diagnostics, and Management.

Claahsen-van der Grinten H, Speiser P, Ahmed S, Arlt W, Auchus R, Falhammar H Endocr Rev. 2021; 43(1):91-159.

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Study to assess the knowledge of caretakers regarding corticosteroid therapy in children with congenital adrenal hyperplasia - 21 hydroxylase deficiency.

Singarayan V, David A, Ayyar V, James S J Family Med Prim Care. 2020; 9(6):2814-2817.

PMID: 32984131 PMC: 7491816. DOI: 10.4103/jfmpc.jfmpc_131_20.

Management of Childhood Congenital Adrenal Hyperplasia-An Integrative Review of the Literature.

Fleming L, Van Riper M, Knafl K J Pediatr Health Care. 2017; 31(5):560-577.

PMID: 28416079 PMC: 5654644. DOI: 10.1016/j.pedhc.2017.02.004.