Losing Independence--the Lived Experience of Being Long-term Sick-listed

Overview

Journal BMC Public Health

Publisher Biomed Central

Specialty Public Health

Date 2013 Aug 14

PMID 23938128

Citations 22

Authors

Linda Lannerstrom

Thorne Wallman

Inger K Holmstrom

Affiliations

Soon will be listed here.

Abstract

Background: Sickness absence is a multifaceted problem. Much is known about risk factors for being long-term sick-listed, but there is still little known about the various aftermaths and experiences of it. The aim of this qualitative study was to describe, analyze and understand long-term sickness-absent people's experiences of being sick-listed.

Methods: The design was descriptive and had a phenomenological approach. Sixteen long-term sickness-absent individuals were purposively sampled from three municipalities in Sweden in 2011, and data were collected through semi-structured, individual interviews. The interview questions addressed how the participants experienced being sick-listed and how the sick-listing affected their lives. Transcribed interviews were analysed using Giorgi's phenomenological method.

Results: The interviews revealed that the participants' experiences of being sick-listed was that they lost their independence in the process of stepping out of working society, attending the mandatory steps in the rehabilitation chain and having numerous encounters with professionals. The participants described that their life-worlds were radically changed when they became sick-listed. Their experiences of their changing life-worlds were mostly highly negative, but there were also a few positive experiences. The most conspicuous findings were the fact that stopping working brought with it so many changes, the participants' feelings of powerlessness in the process, and their experiences of offensive treatment by and/or encounters with professionals.

Conclusions: Sick-listed persons experienced the process of being on long-term sickness absent as very negative. The negative experiences are linked to consequences of stopping to work, consequences of social insurance rules and to negative encounters with professionals handling the sickness absence. The positive experiences of being sick-listed were few in the present study. There is a need to further examine the extent of these negative experiences are and how they affect sick-listed people's recovery and return to work. Long-term sickness absence; sick leave; experiences; interviews; phenomenology; Sweden.

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References

Falkdal A, Edlund C, Dahlgren L . Experiences within the process of sick leave. Scand J Occup Ther. 2006; 13(3):170-82. DOI: 10.1080/11038120500363634. View

Giorgi A . Concerning the application of phenomenology to caring research. Scand J Caring Sci. 2002; 14(1):11-5. DOI: 10.1111/j.1471-6712.2000.tb00555.x. View

Wallman T, Wedel H, Johansson S, Rosengren A, Eriksson H, Welin L . The prognosis for individuals on disability retirement. An 18-year mortality follow-up study of 6887 men and women sampled from the general population. BMC Public Health. 2006; 6:103. PMC: 1459134. DOI: 10.1186/1471-2458-6-103. View

Svensson T, Mussener U, Alexanderson K . Pride, empowerment, and return to work: on the significance of promoting positive social emotions among sickness absentees. Work. 2006; 27(1):57-65. View

Clare L . Managing threats to self: awareness in early stage Alzheimer's disease. Soc Sci Med. 2003; 57(6):1017-29. DOI: 10.1016/s0277-9536(02)00476-8. View

Wallman T, Wedel H, Palmer E, Rosengren A, Johansson S, Eriksson H . Sick-leave track record and other potential predictors of a disability pension. A population based study of 8,218 men and women followed for 16 years. BMC Public Health. 2009; 9:104. PMC: 2674437. DOI: 10.1186/1471-2458-9-104. View

Svensson T, Karlsson A, Alexanderson K, Nordqvist C . Shame-inducing encounters. Negative emotional aspects of sickness-absentees' interactions with rehabilitation professionals. J Occup Rehabil. 2003; 13(3):183-95. DOI: 10.1023/a:1024905302323. View

Jansson I, Bjorklund A . The experience of returning to work. Work. 2007; 28(2):121-34. View

Ockander M, Timpka T . Long-term sickness absence: women's opinions about health and rehabilitation. J Adv Nurs. 2005; 50(5):508-17. DOI: 10.1111/j.1365-2648.2005.03423.x. View

10.

Edwards S, Gabbay M . Living and working with sickness: a qualitative study. Chronic Illn. 2007; 3(2):155-66. DOI: 10.1177/1742395307082124. View

11.

Lundberg J, Kristenson M, Starrin B . Status incongruence revisited: associations with shame and mental wellbeing. Sociol Health Illn. 2009; 31(4):478-93. DOI: 10.1111/j.1467-9566.2008.01148.x. View

12.

Labriola M, Lund T, Christensen K, Albertsen K, Bultmann U, Jensen J . Does self-efficacy predict return-to-work after sickness absence? A prospective study among 930 employees with sickness absence for three weeks or more. Work. 2007; 29(3):233-8. View

13.

Roing M, Hirsch J, Holmstrom I, Schuster M . Making new meanings of being in the world after treatment for oral cancer. Qual Health Res. 2009; 19(8):1076-86. DOI: 10.1177/1049732309341192. View

14.

Vernon S, Buffler P . The status of status inconsistency. Epidemiol Rev. 1988; 10:65-86. DOI: 10.1093/oxfordjournals.epirev.a036029. View

15.

Bryngelson A . Long-term sickness absence and social exclusion. Scand J Public Health. 2009; 37(8):839-45. DOI: 10.1177/1403494809346871. View

16.

Eriksson H, von Celsing A, Wahlstrom R, Janson L, Zander V, Wallman T . Sickness absence and self-reported health a population-based study of 43,600 individuals in central Sweden. BMC Public Health. 2009; 8:426. PMC: 2627845. DOI: 10.1186/1471-2458-8-426. View

17.

Floderus B, Goransson S, Alexanderson K, Aronsson G . Self-estimated life situation in patients on long-term sick leave. J Rehabil Med. 2005; 37(5):291-9. DOI: 10.1080/16501970510034422. View

18.

Reventlow S, Hvas L, Malterud K . Making the invisible body visible. Bone scans, osteoporosis and women's bodily experiences. Soc Sci Med. 2005; 62(11):2720-31. DOI: 10.1016/j.socscimed.2005.11.009. View

19.

Giorgi A . The status of Husserlian phenomenology in caring research. Scand J Caring Sci. 2002; 14(1):3-10. DOI: 10.1111/j.1471-6712.2000.tb00554.x. View

20.

. Sickness absence: causes, consequences, and physicians' sickness certification practice. A systematic literature review by the Swedish Council on Technology Assessment in Health Care (SBU). Scand J Public Health Suppl. 2004; 63:3-263. DOI: 10.1080/14034950410003826. View