Caregivers' Barriers to Disclosing the HIV Diagnosis to Infected Children on Antiretroviral Therapy in a Resource-Limited District in South Africa: A Grounded Theory Study

Overview

Journal AIDS Res Treat

Publisher Wiley

Specialty Infectious Diseases

Date 2013 Jan 11

PMID 23304469

Citations 20

Authors

Sphiwe Madiba

Kebogile Mokwena

Affiliations

Soon will be listed here.

Abstract

We used a grounded theory approach to explore how a sample of caregivers of children on antiretroviral treatment (ART) experience HIV disclosure to their infected children. This paper explores caregivers' barriers to disclosing HIV to infected children. Caregivers of children aged 6-13 years who were receiving ART participated in four focus-group interviews. Three main themes, caregiver readiness to tell, right time to tell, and the context of disclosure, emerged. Disclosure was delayed because caregivers had to first deal with personal fears which influenced their readiness to disclose; disclosure was also delayed because caregivers did not know how to tell. Caregivers lacked disclosure skills because they had not been trained on how to tell their children about their diagnosis, on how to talk to their children about HIV, and on how to deal with a child who reacts negatively to the disclosure. Caregivers feared that the child might tell others about the diagnosis and would be discriminated and socially rejected and that children would live in fear of death and dying. Health care providers have a critical role to play in HIV disclosure to infected children, considering the caregivers' expressed desire to be trained and prepared for the disclosure.

Citing Articles

Socio-Cultural Influencers of Disclosure of HIV Status to Children on Antiretroviral Therapy in the Masaka Region, Uganda: A Qualitative Study.

Kairania R, Onyango-Ouma W, Ondicho T J Int Assoc Provid AIDS Care. 2023; 22:23259582231163695.

PMID: 36972496 PMC: 10052469. DOI: 10.1177/23259582231163695.

Pediatrics HIV-positive status disclosure and its predictors in Ethiopia: a systematic review and meta-analysis.

Belay G, Yehualashet F, Ewunetie A, Atalell K PeerJ. 2022; 10:e13896.

PMID: 36032949 PMC: 9415365. DOI: 10.7717/peerj.13896.

Living With a Stigmatized Identity; Perceptions of Disclosure, Coping, and Medication Adherence Among Adolescent Boys and Young Men in Chiredzi-Zimbabwe.

Kanyemba R, Govender K, Jimu C Front Public Health. 2022; 9:628725.

PMID: 34976904 PMC: 8714778. DOI: 10.3389/fpubh.2021.628725.

Truth, Deception, and Coercion; Communication Strategies Used by Caregivers of Children with Perinatally Acquired HIV During the Pre-Disclosure and Post-Disclosure Period in Rural Communities in South Africa.

Molokwane M, Madiba S Glob Pediatr Health. 2021; 8:2333794X211022269.

PMID: 34104705 PMC: 8170273. DOI: 10.1177/2333794X211022269.

Impact of Friendship Bench problem-solving therapy on adherence to ART in young people living with HIV in Zimbabwe: A qualitative study.

Ouansafi I, Chibanda D, Munetsi E, Simms V PLoS One. 2021; 16(4):e0250074.

PMID: 33886619 PMC: 8061927. DOI: 10.1371/journal.pone.0250074.

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