Development of a Set of Process and Structure Indicators for Palliative Care: the Europall Project

Overview

Journal BMC Health Serv Res

Publisher Biomed Central

Specialty Health Services

Date 2012 Nov 6

PMID 23122255

Citations 13

Authors

Kathrin Woitha

Karen Van Beek

Nisar Ahmed

Jeroen Hasselaar

Jean-Marc Mollard

Isabelle Colombet

Lukas Radbruch

Kris Vissers

Yvonne Engels

Affiliations

Soon will be listed here.

Abstract

Background: By measuring the quality of the organisation of palliative care with process and structure quality indicators (QIs), patients, caregivers and policy makers are able to monitor to what extent recommendations are met, like those of the council of the WHO on palliative care and guidelines. This will support the implementation of public programmes, and will enable comparisons between organisations or countries.

Methods: As no European set of indicators for the organisation of palliative care existed, such a set of QIs was developed. An update of a previous systematic review was made and extended with more databases and grey literature. In two project meetings with practitioners and experts in palliative care the development process of a QI set was finalised and the QIs were categorized in a framework, covering the recommendations of the Council of Europe.

Results: The searches resulted in 151 structure and process indicators, which were discussed in steering group meetings. Of those QIs, 110 were eligible for the final framework.

Conclusions: We developed the first set of QIs for the organisation of palliative care. This article is the first step in a multi step project to identify, validate and pilot QIs.

Citing Articles

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References

Campbell S, Braspenning J, Hutchinson A, Marshall M . Research methods used in developing and applying quality indicators in primary care. BMJ. 2003; 326(7393):816-9. PMC: 1125721. DOI: 10.1136/bmj.326.7393.816. View

Sampson E, Thune-Boyle I, Kukkastenvehmas R, Jones L, Tookman A, King M . Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention. BMC Palliat Care. 2008; 7:8. PMC: 2475530. DOI: 10.1186/1472-684X-7-8. View

Leonard M, Agar M, Mason C, Lawlor P . Delirium issues in palliative care settings. J Psychosom Res. 2008; 65(3):289-98. DOI: 10.1016/j.jpsychores.2008.05.018. View

Campbell S, Ludt S, van Lieshout J, Boffin N, Wensing M, Petek D . Quality indicators for the prevention and management of cardiovascular disease in primary care in nine European countries. Eur J Cardiovasc Prev Rehabil. 2008; 15(5):509-15. DOI: 10.1097/HJR.0b013e328302f44d. View

Hanratty B, Holland P, Jacoby A, Whitehead M . Financial stress and strain associated with terminal cancer--a review of the evidence. Palliat Med. 2007; 21(7):595-607. DOI: 10.1177/0269216307082476. View

Griffin J, Koch K, Nelson J, Cooley M . Palliative care consultation, quality-of-life measurements, and bereavement for end-of-life care in patients with lung cancer: ACCP evidence-based clinical practice guidelines (2nd edition). Chest. 2007; 132(3 Suppl):404S-422S. DOI: 10.1378/chest.07-1392. View

Kairuz T, Gargiulo D, Bunt C, Garg S . Quality, safety and efficacy in the 'off-label' use of medicines. Curr Drug Saf. 2008; 2(1):89-95. DOI: 10.2174/157488607779315471. View

McNiff K, Neuss M, Jacobson J, Eisenberg P, Kadlubek P, Simone J . Measuring supportive care in medical oncology practice: lessons learned from the quality oncology practice initiative. J Clin Oncol. 2008; 26(23):3832-7. DOI: 10.1200/JCO.2008.16.8674. View

Sela R . Screening for depression in palliative cancer patients attending a pain and symptom control clinic. Palliat Support Care. 2007; 5(3):207-17. DOI: 10.1017/s1478951507000375. View

10.

Cook A, Finlay I, Edwards A, Hood K, Higginson I, Goodwin D . Efficiency of searching the grey literature in palliative care. J Pain Symptom Manage. 2001; 22(3):797-801. DOI: 10.1016/s0885-3924(01)00315-3. View

11.

Teunissen S, Verhagen E, Brink M, van der Linden B, Voest E, de Graeff A . Telephone consultation in palliative care for cancer patients: 5 years of experience in The Netherlands. Support Care Cancer. 2006; 15(6):577-582. DOI: 10.1007/s00520-006-0202-y. View

12.

Zib M, Saul P . A pilot audit of the process of end-of-life decision-making in the intensive care unit. Crit Care Resusc. 2007; 9(2):213-8. View

13.

Torres-Vigil I, Aday L, Reyes-Gibby C, De Lima L, Herrera A, Mendoza T . Health care providers' assessments of the quality of advanced-cancer care in Latin American medical institutions: a comparison of predictors in five countries: Argentina, Brazil, Cuba, Mexico, and Peru. J Pain Palliat Care Pharmacother. 2008; 22(1):7-20. DOI: 10.1080/15360280801989195. View

14.

Zaider T, Kissane D . The assessment and management of family distress during palliative care. Curr Opin Support Palliat Care. 2009; 3(1):67-71. PMC: 5557503. DOI: 10.1097/SPC.0b013e328325a5ab. View

15.

Lorenz K . Progress in measuring and improving palliative and end-of-life quality. J Palliat Med. 2008; 11(5):682-4. DOI: 10.1089/jpm.2008.9906. View

16.

. ASCO-ESMO consensus statement on quality cancer care. J Clin Oncol. 2006; 24(21):3498-9. DOI: 10.1200/JCO.2006.07.4021. View

17.

Dudgeon D, Knott C, Eichholz M, Gerlach J, Chapman C, Viola R . Palliative Care Integration Project (PCIP) quality improvement strategy evaluation. J Pain Symptom Manage. 2008; 35(6):573-82. PMC: 7125855. DOI: 10.1016/j.jpainsymman.2007.07.013. View

18.

Weng L, Huang H, Wilkie D, Hoenig N, Suarez M, Marschke M . Predicting survival with the Palliative Performance Scale in a minority-serving hospice and palliative care program. J Pain Symptom Manage. 2008; 37(4):642-8. PMC: 2699378. DOI: 10.1016/j.jpainsymman.2008.03.023. View

19.

Sato K, Miyashita M, Morita T, Sanjo M, Shima Y, Uchitomi Y . Reliability assessment and findings of a newly developed quality measurement instrument: quality indicators of end-of-life cancer care from medical chart review at a Japanese regional cancer center. J Palliat Med. 2008; 11(5):729-37. DOI: 10.1089/jpm.2007.0227. View

20.

Tsai L, Li I, Liu C, Su W, Change T . Application of quality audit tools to evaluate care quality received by terminal cancer patients admitted to a palliative care unit. Support Care Cancer. 2008; 16(9):1067-74. DOI: 10.1007/s00520-007-0365-1. View