Parental Decision Making for Children with Cancer at the End of Life: a Meta-ethnography

Overview

Journal J Pediatr Oncol Nurs

Publisher Sage Publications

Specialties Nursing
Oncology
Pediatrics

Date 2012 Sep 21

PMID 22992427

Citations 11

Authors

Katherine E Heinze

Marie T Nolan

Affiliations

Soon will be listed here.

Abstract

Parents of pediatric oncology patients are faced with difficult decisions when their child reaches the end of life. For health care providers to provide optimal care, they must understand parents' perspectives and preferences in end-of-life decision making. Therefore, this article provides a systematic review of the literature on the end-of-life decision making of parents of children with cancer as well as recommendations for practice and future research. Parents participated in surveys, focus groups, participant observation, and interviews to help researchers understand the expectations, hopes, fears, and values that guide their decision making. Common themes were patient-provider communication, extending time, and understanding prognosis.

Citing Articles

Decision-making regarding place of end-of-life care for children with life-limiting and life-threatening conditions: a systematic integrative review.

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Pediatric Oncology, Palliative Care and Low- or Middle- Income Countries: A Call for Action.

Faizan Siddiqui M, Nohra L, Saleh M, Thakkar K, Trivedi R, Moujally S Glob Pediatr Health. 2023; 10:2333794X231188591.

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Medical experts and trusted confidants: parent perceptions of the clinician-parent relationship in childhood cancer.

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Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis.

Barrett L, Fraser L, Noyes J, Taylor J, Hackett J Palliat Med. 2022; 37(2):178-202.

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Palliative Care in Paediatric Oncology: an Update.

Salins N, Hughes S, Preston N Curr Oncol Rep. 2022; 24(2):175-186.

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