Zamora A, Brown J, Outram S, Ackerman S
Genet Med Open. 2025; 2():101844.
PMID: 39764519
PMC: 11702317.
DOI: 10.1016/j.gimo.2024.101844.
Hasner M, van Opijnen M, de Vos F, Cuppen E, Broekman M
Acta Neurochir (Wien). 2024; 166(1):266.
PMID: 38874628
PMC: 11178618.
DOI: 10.1007/s00701-024-06158-z.
Kasule M, Matshaba M, Wonkam A, de Vries J
BMC Med Ethics. 2023; 24(1):37.
PMID: 37270597
PMC: 10239568.
DOI: 10.1186/s12910-023-00912-1.
Lin J, Hsiao W, Fan C
Comput Struct Biotechnol J. 2019; 17:1135-1142.
PMID: 31462969
PMC: 6709371.
DOI: 10.1016/j.csbj.2019.07.006.
Dyke S, Saulnier K, Dupras C, Webster A, Maschke K, Rothstein M
Genome Med. 2019; 11(1):31.
PMID: 31122281
PMC: 6533659.
DOI: 10.1186/s13073-019-0646-6.
Ethical Issues in Contemporary Clinical Genetics.
Braverman G, Shapiro Z, Bernstein J
Mayo Clin Proc Innov Qual Outcomes. 2018; 2(2):81-90.
PMID: 30225437
PMC: 6124343.
DOI: 10.1016/j.mayocpiqo.2018.03.005.
What People Want to Know About Their Genes: A Critical Review of the Literature on Large-Scale Genome Sequencing Studies.
Scherr C, Aufox S, Ross A, Ramesh S, Wicklund C, Smith M
Healthcare (Basel). 2018; 6(3).
PMID: 30096823
PMC: 6165341.
DOI: 10.3390/healthcare6030096.
Opportunities and Challenges for Genetic Studies of End-Stage Renal Disease in Canada.
Kalatharan V, Lemaire M, Lanktree M
Can J Kidney Health Dis. 2018; 5:2054358118789368.
PMID: 30046452
PMC: 6056781.
DOI: 10.1177/2054358118789368.
Stakeholders in psychiatry and their attitudes toward receiving pertinent and incident findings in genomic research.
Sundby A, Boolsen M, Burgdorf K, Ullum H, Hansen T, Middleton A
Am J Med Genet A. 2017; 173(10):2649-2658.
PMID: 28817238
PMC: 5637903.
DOI: 10.1002/ajmg.a.38380.
Informed consent for next-generation nucleotide sequencing studies: Aiding communication between participants and investigators.
Kost R, Poppel S, Coller B
J Clin Transl Sci. 2017; 1(2):115-120.
PMID: 28649453
PMC: 5471895.
DOI: 10.1017/cts.2016.21.
A Systematic Review of the Management of Incidental Findings in Genomic Research.
Ewuoso C
BEOnline. 2017; 3(1):1-21.
PMID: 28361093
PMC: 5370178.
DOI: 10.20541/beonline.2016.0006.
Returning genome sequences to research participants: Policy and practice.
Wright C, Middleton A, Barrett J, Firth H, Fitzpatrick D, Hurles M
Wellcome Open Res. 2017; 2:15.
PMID: 28317033
PMC: 5351846.
DOI: 10.12688/wellcomeopenres.10942.1.
Pediatric Issues in Return of Results and Incidental Findings: Weighing Autonomy and Best Interests.
Holm I
Genet Test Mol Biomarkers. 2017; 21(3):155-158.
PMID: 28140662
PMC: 5367908.
DOI: 10.1089/gtmb.2016.0414.
Discussing molecular testing in oncology care: Comparing patient and physician information preferences.
Pinheiro A, Pocock R, Switchenko J, Dixon M, Shaib W, Ramalingam S
Cancer. 2017; 123(9):1610-1616.
PMID: 28140456
PMC: 5400669.
DOI: 10.1002/cncr.30494.
Automatic Placement of Genomic Research Results in Medical Records: Do Researchers Have a Duty? Should Participants Have a Choice?.
Prince A, Conley J, Davis A, Lazaro-Munoz G, Cadigan R
J Law Med Ethics. 2015; 43(4):827-42.
PMID: 26711421
PMC: 4780406.
DOI: 10.1111/jlme.12323.
Incidental Findings with Genomic Testing: Implications for Genetic Counseling Practice.
Roche M, Berg J
Curr Genet Med Rep. 2015; 3(4):166-176.
PMID: 26566463
PMC: 4633435.
DOI: 10.1007/s40142-015-0075-9.
Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.
Holm I, Iles B, Ziniel S, Bacon P, Savage S, Christensen K
J Empir Res Hum Res Ethics. 2015; 10(4):414-26.
PMID: 26376753
PMC: 6686662.
DOI: 10.1177/1556264615599620.
Identification of Medically Actionable Secondary Findings in the 1000 Genomes.
Olfson E, Cottrell C, Davidson N, Gurnett C, Heusel J, Stitziel N
PLoS One. 2015; 10(9):e0135193.
PMID: 26332594
PMC: 4558085.
DOI: 10.1371/journal.pone.0135193.
Using community-based participatory research principles to develop more understandable recruitment and informed consent documents in genomic research.
Skinner H, Calancie L, Vu M, Garcia B, DeMarco M, Patterson C
PLoS One. 2015; 10(5):e0125466.
PMID: 25938669
PMC: 4418607.
DOI: 10.1371/journal.pone.0125466.
Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.
Middleton A, Morley K, Bragin E, Firth H, Hurles M, Wright C
Eur J Hum Genet. 2015; 24(1):21-9.
PMID: 25920556
PMC: 4795240.
DOI: 10.1038/ejhg.2015.58.