Impact of Type 1 Diabetes Mellitus on the Family is Reduced with the Medical Home, Care Coordination, and Family-centered Care

Overview

Journal J Pediatr

Specialty Pediatrics

Date 2011 Dec 3

PMID 22133424

Citations 30

Authors

Michelle L Katz

Lori M Laffel

James M Perrin

Karen Kuhlthau

Affiliations

Soon will be listed here.

Abstract

Objectives: To examine whether the medical home, care coordination, or family-centered care was associated with less impact of type 1 diabetes mellitus (T1D) on families' work, finances, time, and school attendance.

Study Design: With the 2005 to 2006 National Survey of Children with Special Health Care Needs, we compared impact in children with T1D (n = 583) with that in children with other special health care needs (n = 39 944) and children without special health care needs (n = 4945). We modeled the associations of the medical home, care coordination, and family-centered care with family impact in T1D.

Results: Seventy-five percent of families of children with T1D reported a major impact compared with 45% of families of children with special health care needs (P < .0001) and 17% of families of children without special health care needs (P < .0001). In families of children with T1D, 35% reported restricting work, 38% reported financial impact, 41% reported medical expenses >$1000/year, 24% reported spending ≥11 hours/week caring or coordination care, and 20% reported ≥11 school absences/year. The medical home, care coordination, and family-centered care were associated with less work and financial impact.

Conclusions: In childhood T1D, most families experience major impact. Better systems of health care delivery may help families reduce some of this impact.

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