Midlife and Aging Parents of Adults with Intellectual and Developmental Disabilities: Impacts of Lifelong Parenting

Overview

Journal Am J Intellect Dev Disabil

Specialty Psychiatry

Date 2011 Dec 1

PMID 22126660

Citations 56

Authors

Marsha Mailick Seltzer

Frank Floyd

Jieun Song

Jan Greenberg

Jinkuk Hong

Affiliations

Soon will be listed here.

Abstract

Using population data, this study included parents of individuals with intellectual and developmental disabilities (n = 220) and parents of individuals without disabilities (n = 1,042). Parents of individuals with intellectual and developmental disabilities were further divided into those who co-resided with their adult child and those whose adult child lived elsewhere, and the 3 groups were compared regarding parental patterns of attainment, social participation, psychological functioning, and health in midlife and early old age. In midlife, parents of individuals with intellectual and developmental disabilities were similar in general to comparison parents. However, by early old age, these parents had poorer health and mental health. Co-residence between the adult with intellectual and developmental disabilities and the parent was prevalent during midlife (51.4%) and in the early years of old age (38.6%), and there were different patterns of parental outcomes, depending on the residential status of the adult with intellectual and developmental disabilities.

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References

Seltzer M, Greenberg J, Floyd F, Pettee Y, Hong J . Life course impacts of parenting a child with a disability. Am J Ment Retard. 2001; 106(3):265-86. DOI: 10.1352/0895-8017(2001)106<0265:LCIOPA>2.0.CO;2. View

Kaplan M, Huguet N, Orpana H, Feeny D, McFarland B, Ross N . Prevalence and factors associated with thriving in older adulthood: a 10-year population-based study. J Gerontol A Biol Sci Med Sci. 2008; 63(10):1097-104. PMC: 3544549. DOI: 10.1093/gerona/63.10.1097. View

Seltzer M, Greenberg J, Hong J, Smith L, Almeida D, Coe C . Maternal cortisol levels and behavior problems in adolescents and adults with ASD. J Autism Dev Disord. 2009; 40(4):457-69. PMC: 2837763. DOI: 10.1007/s10803-009-0887-0. View

Hirst M . Young adults with disabilities: health, employment and financial costs for family carers. Child Care Health Dev. 1985; 11(5):291-307. DOI: 10.1111/j.1365-2214.1985.tb00471.x. View

Fryback D, Dunham N, Palta M, Hanmer J, Buechner J, Cherepanov D . US norms for six generic health-related quality-of-life indexes from the National Health Measurement study. Med Care. 2007; 45(12):1162-70. PMC: 2647803. DOI: 10.1097/MLR.0b013e31814848f1. View

Feeny D, Furlong W, Boyle M, Torrance G . Multi-attribute health status classification systems. Health Utilities Index. Pharmacoeconomics. 1995; 7(6):490-502. DOI: 10.2165/00019053-199507060-00004. View

Feeny D, Huguet N, McFarland B, Kaplan M . The construct validity of the Health Utilities Index Mark 3 in assessing mental health in population health surveys. Qual Life Res. 2009; 18(4):519-26. PMC: 3560849. DOI: 10.1007/s11136-009-9457-3. View

Rogers C, Floyd F, Seltzer M, Greenberg J, Hong J . Long-term effects of the death of a child on parents' adjustment in midlife. J Fam Psychol. 2008; 22(2):203-11. PMC: 2841012. DOI: 10.1037/0893-3200.22.2.203. View

Miodrag N, Hodapp R . Chronic stress and health among parents of children with intellectual and developmental disabilities. Curr Opin Psychiatry. 2010; 23(5):407-11. DOI: 10.1097/YCO.0b013e32833a8796. View

10.

Singer G . Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. Am J Ment Retard. 2006; 111(3):155-69. DOI: 10.1352/0895-8017(2006)111[155:MOCSOD]2.0.CO;2. View

11.

Crnic K, Pedersen Y Arbona A, Baker B, Blacher J . MOTHERS AND FATHERS TOGETHER: CONTRASTS IN PARENTING ACROSS PRESCHOOL TO EARLY SCHOOL AGE IN CHILDREN WITH DEVELOPMENTAL DELAYS. Int Rev Res Ment Retard. 2011; 37:3-30. PMC: 2836020. DOI: 10.1016/S0074-7750(09)37001-9. View

12.

Gatz M, Hurwicz M . Are old people more depressed? Cross-sectional data on Center for Epidemiological Studies Depression Scale factors. Psychol Aging. 1990; 5(2):284-90. DOI: 10.1037//0882-7974.5.2.284. View

13.

Robert S, Cherepanov D, Palta M, Dunham N, Feeny D, Fryback D . Socioeconomic status and age variations in health-related quality of life: results from the national health measurement study. J Gerontol B Psychol Sci Soc Sci. 2009; 64(3):378-89. PMC: 2670253. DOI: 10.1093/geronb/gbp012. View

14.

Warren J, Hoonakker P, Carayon P, Brand J . Job characteristics as mediators in SES-health relationships. Soc Sci Med. 2004; 59(7):1367-78. DOI: 10.1016/j.socscimed.2004.01.035. View

15.

Maddigan S, Feeny D, Majumdar S, Farris K, Johnson J . Health Utilities Index mark 3 demonstrated construct validity in a population-based sample with type 2 diabetes. J Clin Epidemiol. 2006; 59(5):472-7. DOI: 10.1016/j.jclinepi.2005.09.010. View

16.

Pudrovska T . Parenthood, stress, and mental health in late midlife and early old age. Int J Aging Hum Dev. 2009; 68(2):127-47. PMC: 4150355. DOI: 10.2190/AG.68.2.b. View

17.

Baker B, McIntyre L, Blacher J, Crnic K, Edelbrock C, Low C . Pre-school children with and without developmental delay: behaviour problems and parenting stress over time. J Intellect Disabil Res. 2003; 47(Pt 4-5):217-30. DOI: 10.1046/j.1365-2788.2003.00484.x. View

18.

Seltzer M, Almeida D, Greenberg J, Savla J, Stawski R, Hong J . Psychosocial and biological markers of daily lives of midlife parents of children with disabilities. J Health Soc Behav. 2009; 50(1):1-15. PMC: 2679175. DOI: 10.1177/002214650905000101. View

19.

Seltzer M, Krauss M, Hong J, Orsmond G . Continuity or discontinuity of family involvement following residential transitions of adults who have mental retardation. Ment Retard. 2001; 39(3):181-94. DOI: 10.1352/0047-6765(2001)039<0181:CODOFI>2.0.CO;2. View

20.

Parish S, Seltzer M, Greenberg J, Floyd F . Economic implications of caregiving at midlife: comparing parents with and without children who have developmental disabilities. Ment Retard. 2004; 42(6):413-26. DOI: 10.1352/0047-6765(2004)42<413:EIOCAM>2.0.CO;2. View