Biobanks and the Return of Research Results: out with the Old and in with the New?
Overview
Authors
Affiliations
This article examines the complex and contemporary issue of the return of research results in biobanks. After suggesting the exclusion of some adjacent issues usually flanking the debate, this article reviews the current practices of biobanks on the disclosure of research results to participants. It then focuses more specifically on the debate in the literature before turning to a review of the typology of recent reforms being put forward.
Current Status and Future Challenges of Biobank Research in Malaysia.
Amin L, Olesen A, Mahadi Z, Ibrahim M Asian Bioeth Rev. 2021; 13(3):297-315.
PMID: 34295385 PMC: 8245627. DOI: 10.1007/s41649-021-00171-5.
Attitudes of stakeholders in psychiatry towards the inclusion of children in genomic research.
Sundby A, Boolsen M, Burgdorf K, Ullum H, Hansen T, Mors O Hum Genomics. 2018; 12(1):12.
PMID: 29506557 PMC: 5839067. DOI: 10.1186/s40246-018-0144-8.
Condit C, Shen L, Edwards K, Bowen D, Korngiebel D, Johnson C J Health Commun. 2016; 21(sup2):16-24.
PMID: 27653592 PMC: 7868084. DOI: 10.1080/10810730.2016.1193914.
Return of genetic testing results in the era of whole-genome sequencing.
Knoppers B, Zawati M, Senecal K Nat Rev Genet. 2015; 16(9):553-9.
PMID: 26239711 DOI: 10.1038/nrg3960.
Prucka S, Arnold L, Brandt J, Gilardi S, Harty L, Hong F Bioethics. 2014; 29(2):82-90.
PMID: 24471556 PMC: 4305195. DOI: 10.1111/bioe.12073.