Organizing a Series of Education and Support Conferences for Caregivers of Individuals With Frontotemporal Dementia and Primary Progressive Aphasia

Overview

Journal Alzheimers Care Q

Date 2011 Sep 28

PMID 20596301

Citations 7

Authors

Sarah Banks

Emily Rogalski

Jennifer Medina

Andrea Skoglund

Darby Morhardt

Affiliations

Soon will be listed here.

Abstract

Frontotemporal dementia and primary progressive aphasia are relatively rare dementias, with average age of onset in the 40s to 60s, and cause initial degeneration in behavior and language, respectively. Caregivers of diagnosed individuals report that there is little information available about these diseases. In response to this need, we designed and implemented a 3-part series of conferences aimed to educate and provide support to these caregivers. This article introduces the reader to the 2 disorders, highlights the need for specialized resources, and describes the execution of the conferences. The need for similar resources to be offered in other regions is discussed.

Citing Articles

Enhancement of carer skills and patient function in the non-pharmacological management of frontotemporal dementia (FTD): A call for randomised controlled studies.

OConnor C, Clemson L, da Silva T, Piguet O, Hodges J, Mioshi E Dement Neuropsychol. 2017; 7(2):143-150.

PMID: 29213832 PMC: 5619510. DOI: 10.1590/S1980-57642013DN70200002.

Behavioural interventions for enhancing life participation in behavioural variant frontotemporal dementia and primary progressive aphasia.

Kortte K, Rogalski E Int Rev Psychiatry. 2013; 25(2):237-45.

PMID: 23611353 PMC: 3659798. DOI: 10.3109/09540261.2012.751017.

Generalized and symptom-specific insight in behavioral variant frontotemporal dementia and primary progressive aphasia.

Banks S, Weintraub S J Neuropsychiatry Clin Neurosci. 2009; 21(3):299-306.

PMID: 19776310 PMC: 2957481. DOI: 10.1176/jnp.2009.21.3.299.

Clinical trajectories and biological features of primary progressive aphasia (PPA).

Rogalski E, Mesulam M Curr Alzheimer Res. 2009; 6(4):331-6.

PMID: 19689231 PMC: 2863134. DOI: 10.2174/156720509788929264.

A review on primary progressive aphasia.

Leger G, Johnson N Neuropsychiatr Dis Treat. 2009; 3(6):745-52.

PMID: 19300609 PMC: 2656316. DOI: 10.2147/ndt.s1493.

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