Waung M, Ma F, Wheeler A, Zai C, So J
Biology (Basel). 2023; 12(12).
PMID: 38132285
PMC: 10740572.
DOI: 10.3390/biology12121459.
Mallett A, Stark Z, Fehlberg Z, Best S, Goranitis I
Hum Genomics. 2023; 17(1):75.
PMID: 37587497
PMC: 10433656.
DOI: 10.1186/s40246-023-00524-1.
Halley M, Young J, Fernandez L, Kohler J, Bernstein J, Wheeler M
Am J Med Genet A. 2022; 188(4):1088-1101.
PMID: 34981646
PMC: 8923971.
DOI: 10.1002/ajmg.a.62619.
Smith H, Brothers K, Knight S, Ackerman S, Rini C, Veenstra D
Am J Hum Genet. 2021; 108(11):2027-2036.
PMID: 34687653
PMC: 8595895.
DOI: 10.1016/j.ajhg.2021.08.013.
Engel L, Bryan S, Whitehurst D
Pharmacoeconomics. 2021; 39(12):1383-1395.
PMID: 34423386
DOI: 10.1007/s40273-021-01074-x.
Public Understanding and Opinions regarding Genetic Research on Alzheimer's Disease.
Kent S, Bardach S, Zhang X, Abner E, Grill J, Jicha G
Public Health Genomics. 2019; 21(5-6):228-237.
PMID: 31326966
PMC: 6932626.
DOI: 10.1159/000501464.
Qualitative study of system-level factors related to genomic implementation.
Zebrowski A, Ellis D, Barg F, Sperber N, Bernhardt B, Denny J
Genet Med. 2018; 21(7):1534-1540.
PMID: 30467402
PMC: 6533158.
DOI: 10.1038/s41436-018-0378-9.
Patient preferences for massively parallel sequencing genetic testing of colorectal cancer risk: a discrete choice experiment.
Weymann D, Veenstra D, Jarvik G, Regier D
Eur J Hum Genet. 2018; 26(9):1257-1265.
PMID: 29802320
PMC: 6117311.
DOI: 10.1038/s41431-018-0161-z.
Diagnosis of rare diseases under focus: impacts for Canadian patients.
Esquivel-Sada D, Nguyen M
J Community Genet. 2017; 9(1):37-50.
PMID: 28733824
PMC: 5752651.
DOI: 10.1007/s12687-017-0320-x.
How do women trade-off benefits and risks in chemotherapy treatment decisions based on gene expression profiling for early-stage breast cancer? A discrete choice experiment.
Marshall D, Deal K, Bombard Y, Leighl N, MacDonald K, Trudeau M
BMJ Open. 2016; 6(6):e010981.
PMID: 27256091
PMC: 4893875.
DOI: 10.1136/bmjopen-2015-010981.
Attitudes to incorporating genomic risk assessments into population screening programs: the importance of purpose, context and deliberation.
Nicholls S, Etchegary H, Carroll J, Castle D, Lemyre L, Potter B
BMC Med Genomics. 2016; 9(1):25.
PMID: 27215612
PMC: 4878078.
DOI: 10.1186/s12920-016-0186-5.
Was it worth it? Patients' perspectives on the perceived value of genomic-based individualized medicine.
Halverson C, Clift K, McCormick J
J Community Genet. 2016; 7(2):145-52.
PMID: 26860291
PMC: 4796045.
DOI: 10.1007/s12687-016-0260-x.
Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.
Holm I, Iles B, Ziniel S, Bacon P, Savage S, Christensen K
J Empir Res Hum Res Ethics. 2015; 10(4):414-26.
PMID: 26376753
PMC: 6686662.
DOI: 10.1177/1556264615599620.
Societal preferences for the return of incidental findings from clinical genomic sequencing: a discrete-choice experiment.
Regier D, Peacock S, Pataky R, van der Hoek K, Jarvik G, Hoch J
CMAJ. 2015; 187(6):E190-E197.
PMID: 25754703
PMC: 4387060.
DOI: 10.1503/cmaj.140697.
DTC-and-Me: Patient, Provider, Proteins and Regulators.
Steele F, Gold L
J Pers Med. 2015; 4(1):79-87.
PMID: 25562144
PMC: 4251405.
DOI: 10.3390/jpm4010079.
Valuations of genetic test information for treatable conditions: the case of colorectal cancer screening.
Kilambi V, Reed Johnson F, Gonzalez J, Mohamed A
Value Health. 2014; 17(8):838-45.
PMID: 25498779
PMC: 4492688.
DOI: 10.1016/j.jval.2014.09.001.
Ethical signposts for clinical geneticists in secondary variant and incidental finding disclosure discussions.
Christenhusz G, Devriendt K, Van Esch H, Dierickx K
Med Health Care Philos. 2014; 18(3):361-70.
PMID: 25407129
DOI: 10.1007/s11019-014-9611-8.
Public preferences for the return of research results in genetic research: a conjoint analysis.
Murphy Bollinger J, Bridges J, Mohamed A, Kaufman D
Genet Med. 2014; 16(12):932-9.
PMID: 24854226
PMC: 4241188.
DOI: 10.1038/gim.2014.50.
Parents' preferences for return of results in pediatric genomic research.
Ziniel S, Savage S, Huntington N, Amatruda J, Green R, Weitzman E
Public Health Genomics. 2014; 17(2):105-14.
PMID: 24642506
PMC: 4073487.
DOI: 10.1159/000358539.
The Informed Cohort Oversight Board: From Values to Architecture.
Holm I, Taylor P
Minn J Law Sci Technol. 2013; 13(2):669-690.
PMID: 24371432
PMC: 3872117.