Feasibility of a Patient-driven Approach to Recruiting Older Adults, Caregivers, and Clinicians for Provider-patient Communication Research

Overview

Journal J Am Acad Nurse Pract

Specialty Nursing

Date 2009 Jul 15

PMID 19594656

Citations 4

Authors

Jennifer H Lingler

Lynn M Martire

Amanda E Hunsaker

Michele G Greene

Mary Amanda Dew

Richard Schulz

Affiliations

Soon will be listed here.

Abstract

Purpose: This report describes the implementation of a novel, patient-driven approach to recruitment for a study of interpersonal communication in a primary care setting involving persons with Alzheimer's disease (AD), their family caregivers, and their primary care providers (PCPs).

Data Sources: Patients and caregivers were centrally recruited from a university-based memory clinic, followed by the recruitment of patient's individual PCPs. Recruitment tracking, naturalistic observation, and survey methods were used to evaluate recruitment success.

Conclusions: About half of the patients and caregivers (n = 54; 51%) and most of the PCPs (n = 31; 76%) who we approached agreed to an audiorecording of the patient's next PCP visit. Characteristics of patient, caregiver, and PCP participants were compared to those of nonparticipants. Patient characteristics did not differ by participation status. Caregivers who volunteered for the study were more likely to be female and married than were those who declined to participate. Compared to nonparticipants, PCPs who agreed to the study were appraised slightly more favorably by patients' caregivers on a measure of satisfaction with care on the day of the visit. The vast majority of participating PCPs (95%) reported that the study had little or no impact on the flow of routine clinical operations.

Implications For Research: Findings support the feasibility of a patient-driven approach to recruitment for studies involving multiple linked participants. Our discussion highlights possible advantages of such an approach, including the potential to empower patient participants while achieving maximum variability within the pool of clinician participants.

Citing Articles

Caregiver recruitment strategies for interventions designed to optimize transitions from hospital to home: lessons from a randomized trial.

Gustavson A, Horstman M, Cogswell J, Holland D, Vanderboom C, Mandrekar J Trials. 2024; 25(1):454.

PMID: 38965624 PMC: 11223294. DOI: 10.1186/s13063-024-08288-2.

A New Measure of Research Participant Burden: Brief Report.

Lingler J, Schmidt K, Gentry A, Hu L, Terhorst L J Empir Res Hum Res Ethics. 2015; 9(4):46-9.

PMID: 26125079 PMC: 4487419. DOI: 10.1177/1556264614545037.

Discussing dementia-related behaviors during medical visits for people with Alzheimer's disease.

Hunsaker A, Schmidt K, Lingler J Am J Alzheimers Dis Other Demen. 2010; 25(3):248-54.

PMID: 20147601 PMC: 3055741. DOI: 10.1177/1533317509357734.

Verbal communication among Alzheimer's disease patients, their caregivers, and primary care physicians during primary care office visits.

Schmidt K, Lingler J, Schulz R Patient Educ Couns. 2009; 77(2):197-201.

PMID: 19395224 PMC: 2839539. DOI: 10.1016/j.pec.2009.03.023.

References

Berry D, Wilkie D, Thomas Jr C, Fortner P . Clinicians communicating with patients experiencing cancer pain. Cancer Invest. 2003; 21(3):374-81. DOI: 10.1081/cnv-120018228. View

Folstein M, Folstein S, McHugh P . "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975; 12(3):189-98. DOI: 10.1016/0022-3956(75)90026-6. View

Levinson W, Dull V, Roter D, Chaumeton N, Frankel R . Recruiting physicians for office-based research. Med Care. 1998; 36(6):934-7. DOI: 10.1097/00005650-199806000-00016. View

Scott J, Cohen D, Orzano A, Jaen C, Crabtree B . Antibiotic use in acute respiratory infections and the ways patients pressure physicians for a prescription. J Fam Pract. 2001; 50(10):853-8. View

Robinson J, Jon F N . Grounding research and medical education about religion in actual physician-patient interaction: church attendance, social support, and older adults. Health Commun. 2004; 16(1):63-85. DOI: 10.1207/S15327027HC1601_5. View

WOLF M, Putnam S, James S, Stiles W . The Medical Interview Satisfaction Scale: development of a scale to measure patient perceptions of physician behavior. J Behav Med. 1978; 1(4):391-401. DOI: 10.1007/BF00846695. View

Bensing J, Roter D, Hulsman R . Communication patterns of primary care physicians in the United States and the Netherlands. J Gen Intern Med. 2003; 18(5):335-42. PMC: 1494863. DOI: 10.1046/j.1525-1497.2003.10735.x. View

Lopez O, Becker J, Klunk W, Saxton J, Hamilton R, Kaufer D . Research evaluation and diagnosis of probable Alzheimer's disease over the last two decades: I. Neurology. 2001; 55(12):1854-62. DOI: 10.1212/wnl.55.12.1854. View

Rhoades D, McFarland K, Finch W, Johnson A . Speaking and interruptions during primary care office visits. Fam Med. 2001; 33(7):528-32. View

10.

McKhann G, Drachman D, Folstein M, Katzman R, Price D, Stadlan E . Clinical diagnosis of Alzheimer's disease: report of the NINCDS-ADRDA Work Group under the auspices of Department of Health and Human Services Task Force on Alzheimer's Disease. Neurology. 1984; 34(7):939-44. DOI: 10.1212/wnl.34.7.939. View

11.

Tobacman J, Kissinger P, Wells M, Prokuski J, Hoyer M, McPherson P . Implementation of personal health records by case managers in a VAMC general medicine clinic. Patient Educ Couns. 2004; 54(1):27-33. DOI: 10.1016/S0738-3991(03)00184-8. View

12.

Cooper L, Roter D, Johnson R, Ford D, Steinwachs D, Powe N . Patient-centered communication, ratings of care, and concordance of patient and physician race. Ann Intern Med. 2003; 139(11):907-15. DOI: 10.7326/0003-4819-139-11-200312020-00009. View

13.

Roter D, Larson S, Fischer G, Arnold R, Tulsky J . Experts practice what they preach: A descriptive study of best and normative practices in end-of-life discussions. Arch Intern Med. 2000; 160(22):3477-85. DOI: 10.1001/archinte.160.22.3477. View

14.

Mann S, Sripathy K, Siegler E, Davidow A, Lipkin M, Roter D . The medical interview: differences between adult and geriatric outpatients. J Am Geriatr Soc. 2001; 49(1):65-71. DOI: 10.1046/j.1532-5415.2001.49011.x. View

15.

Gordon H, Street Jr R, Kelly P, Souchek J, Wray N . Physician-patient communication following invasive procedures: an analysis of post-angiogram consultations. Soc Sci Med. 2005; 61(5):1015-25. DOI: 10.1016/j.socscimed.2004.12.021. View

16.

Beach M, Roter D, Larson S, Levinson W, Ford D, Frankel R . What do physicians tell patients about themselves? A qualitative analysis of physician self-disclosure. J Gen Intern Med. 2004; 19(9):911-6. PMC: 1492523. DOI: 10.1111/j.1525-1497.2004.30604.x. View

17.

Ishikawa H, Takayama T, Yamazaki Y, Seki Y, Katsumata N . Physician-patient communication and patient satisfaction in Japanese cancer consultations. Soc Sci Med. 2002; 55(2):301-11. DOI: 10.1016/s0277-9536(01)00173-3. View

18.

Clayman M, Roter D, Wissow L, Bandeen-Roche K . Autonomy-related behaviors of patient companions and their effect on decision-making activity in geriatric primary care visits. Soc Sci Med. 2005; 60(7):1583-91. DOI: 10.1016/j.socscimed.2004.08.004. View

19.

Cruz M, Pincus H . Research on the influence that communication in psychiatric encounters has on treatment. Psychiatr Serv. 2002; 53(10):1253-65. DOI: 10.1176/appi.ps.53.10.1253. View

20.

Ellington L, Roter D, Dudley W, Baty B, Upchurch R, Larson S . Communication analysis of BRCA1 genetic counseling. J Genet Couns. 2005; 14(5):377-86. DOI: 10.1007/s10897-005-3660-3. View