A Research Agenda for Personal Health Records (PHRs)

Overview

Journal J Am Med Inform Assoc

Publisher Oxford University Press

Specialty Medical Informatics

Date 2008 Aug 30

PMID 18756002

Citations 115

Authors

David C Kaelber

Ashish K Jha

Douglas Johnston

Blackford Middleton

David W Bates

Affiliations

Soon will be listed here.

Abstract

Patients, policymakers, providers, payers, employers, and others have increasing interest in using personal health records (PHRs) to improve healthcare costs, quality, and efficiency. While organizations now invest millions of dollars in PHRs, the best PHR architectures, value propositions, and descriptions are not universally agreed upon. Despite widespread interest and activity, little PHR research has been done to date, and targeted research investment in PHRs appears inadequate. The authors reviewed the existing PHR specific literature (100 articles) and divided the articles into seven categories, of which four in particular--evaluation of PHR functions, adoption and attitudes of healthcare providers and patients towards PHRs, PHR related privacy and security, and PHR architecture--present important research opportunities. We also briefly discuss other research related to PHRs, PHR research funding sources, and PHR business models. We believe that additional PHR research can increase the likelihood that future PHR system deployments will beneficially impact healthcare costs, quality, and efficiency.

Citing Articles

Intention to use personal health records and associated factors among healthcare providers in southwest Oromia region referral hospitals, Ethiopia: using the modified unified theory of acceptance and use technology 2 model.

Dube G, Asemahagn M, Mulu Y, Guadie H, Ahmed M, Walle A Front Digit Health. 2025; 7:1368588.

PMID: 40070541 PMC: 11893608. DOI: 10.3389/fdgth.2025.1368588.

Impact of encounters on patient app use: results of a tethered mobile personal health record usage pattern analysis.

Tak Y, Kim J, Lee J, Lee Y BMC Health Serv Res. 2024; 24(1):1428.

PMID: 39558323 PMC: 11572374. DOI: 10.1186/s12913-024-11881-5.

Enhancing Patient Understanding of Laboratory Test Results: Systematic Review of Presentation Formats and Their Impact on Perception, Decision, Action, and Memory.

van der Mee F, Schaper F, Jansen J, Bons J, Meex S, Cals J J Med Internet Res. 2024; 26():e53993.

PMID: 39133906 PMC: 11347896. DOI: 10.2196/53993.

A machine learning approach using conditional normalizing flow to address extreme class imbalance problems in personal health records.

Kim Y, Choi W, Choi W, Ko G, Han S, Kim H BioData Min. 2024; 17(1):14.

PMID: 38796471 PMC: 11127363. DOI: 10.1186/s13040-024-00366-0.

Integrated personal health record (PHR) security: requirements and mechanisms.

Hosseini A, Emami H, Sadat Y, Paydar S BMC Med Inform Decis Mak. 2023; 23(1):116.

PMID: 37430242 PMC: 10334660. DOI: 10.1186/s12911-023-02225-0.

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