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Desperately Seeking "normal": the Promise and Perils of Living with Kidney Transplantation

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Journal Soc Sci Med
Date 2005 Jun 14
PMID 15950094
Citations 13
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Abstract

Organ transplantation offers a dramatic example of the promises for health held out by biomedicine-and thus, a productive vantage point from which to interrogate those promises. Drawing on ethnographic research on kidney transplantation in Guadalajara, Mexico, this article examines the version of "health" offered to patients through transplantation. The paper explores patients' transplant trajectories as they move from learning to desire a transplant to actually receiving one and living with it over the long term, all within particular structuring sociocultural and political economic conditions. The article analyzes how transplanted patients are forced to come to terms with the contingent states of "health" and "normality" wrought by transplantation as they carve out an existence in the persistently liminal spaces between the roles of "sick" and "healthy," dependent patient and fully contributing family member.

Citing Articles

Factors Influencing Self-Management Behaviors Among Patients with Post-Kidney Transplantation: A Qualitative Study of the Chronic Phase Transition.

Matsumura N, Mizukawa M, Sato K, Hashino A, Kazawa K, Naka M Healthcare (Basel). 2024; 12(22).

PMID: 39595462 PMC: 11594251. DOI: 10.3390/healthcare12222264.


Losing Much More Than a Transplant: A Qualitative Study of Kidney Transplant Recipients' Experiences of Graft Failure.

Slominska A, Kinsella E, El-Wazze S, Gaudio K, Shamseddin M, Bugeja A Kidney Int Rep. 2024; 9(10):2937-2945.

PMID: 39430187 PMC: 11489391. DOI: 10.1016/j.ekir.2024.07.011.


Counselling on Conceiving: Attitudes and Factors Influencing Advice of Professionals in Transplantation.

van Buren M, Gosselink M, Massey E, van de Wetering J, Lely A Transpl Int. 2023; 36:11052.

PMID: 37234219 PMC: 10205991. DOI: 10.3389/ti.2023.11052.


Interventions for and experiences of shared decision-making underpinning reproductive health, family planning options and pregnancy for women with or at high risk of kidney disease: a systematic review and qualitative framework synthesis.

Laughlin L, Neukirchinger B, Noyes J BMJ Open. 2022; 12(8):e062392.

PMID: 35940837 PMC: 9364395. DOI: 10.1136/bmjopen-2022-062392.


EXPloring attitudes and factors influencing reproductive Choices in kidney Transplant patients (The EXPECT-study).

van Buren M, Beck D, Lely A, van de Wetering J, Massey E Clin Transplant. 2021; 35(12):e14473.

PMID: 34453355 PMC: 9285546. DOI: 10.1111/ctr.14473.